First Municipal Government Adopts Life Saving Plan for People With MCS/ES, CFS/ME, and FM

Good news for some people who have MCS/ES, CFS/ME, and FM

Tarragona SPAIN

RESCUE PLAN FOR PEOPLE WITH CENTRAL SENSITIVITY SYNDROMES:

THE CITY OF TARRAGONA (CATALONIA, SPAIN) IS THE FIRST MUNICIPAL GOVERNMENT THAT IMPLEMENTS IT!

The first municipal government that has stepped forward to implement this plan, is the City of Tarragona Municipal Government (Tarragona is a major city 100 kilometres south of Barcelona). In the plenary session held last November 30th, the “Institutional Declaration of support for people with Central Sensitivity Syndromes” was approved, which consists of a concrete programme of measures. This is a historical step.

In part, the agreement includes:

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Accessible Meetings Guide Addresses Chemical and Electrical Sensitivities

Another great resource shared by Mary Lamielle, this time on how to make events accessible for people with MCS/ES.

Accessible Meetings Guide Addresses Chemical and Electrical Sensitivities

The new online resource from ADA Hospitality, Accessible Meetings, Events & Conferences addresses chemical and electrical sensitivities in their planning process.

“The guide is an updated version of a 1993 work authored by June Isaacson Kailes and Darrell Jones. The Mid-Atlantic ADA Center and TransCen Inc. sponsored the update and publication in recognition of the 25th anniversary of the ADA. The updated version includes both regulatory updates along with practical guidance from meeting planning professionals and subject matter experts.

Mary Lamielle, Executive Director of the National Center for Environmental Health Strategies (NCEHS), was invited to comment on the 1993 Guide for the update. She made extensive recommendations addressing the access needs of people with chemical and electrical sensitivities.

The following pages include the NCEHS fact sheet Planning an Accessible Meeting or Event for People with Environmental Sensitivities or Intolerances and recommendations that were incorporated into the just-issued guide. Those with environmental sensitivities are urged to use the fact sheet and the guide to substantiate individual disability accommodation needs and to ensure all meetings are healthier for everyone.”

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In a Doctor’s Own Words: A Toxic Legacy and 12,000 (+) Canaries Later

 

Dr. John Molot is a doctor who sees patients with complex, chronic, environmentally linked, and often disabling, health conditions. Although he is retiring from private practice, he is still a staff physician in the Environmental Health Clinic at Women’s College Hospital in Toronto.

He recently released a book, “12,000 Canaries Can’t Be Wrong“,  wrote a report in support of the Ontario Centre of Excellence in Environmental Health (OCEEH), and appears in a video presentation about the health effects of common  chemical exposures (see below).

Check these out:

12,000 Canaries Can’t be Wrong
What’s making you sick & what can you do about it

http://johnmolot.com/books/

12000Canaries_hiRessm

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Harvard Medical School Associate Professor Speaks about MCS: Video

Dr. L. Christine Oliver is an Associate Professor of Clinical Medicine at Harvard Medical School and Co-Director of Occupational and Environmental Medicine at Massachusetts General Hospital.

This is an excellent half hour presentation.

Dr Oliver packs so much about the issues faced by people with MCS into the first 16 minutes of this video. If you can’t watch the whole video, at least watch this much.  Alison Johnson finishes off by reading from her important book Amputated Lives.

Alison Johnson is the author/producer/director of books and documentaries on Multiple Chemical Sensitivity. Visit http://www.alisonjohnsonmcs.com to download a transcript or to purchase her books or DVDs.

amputated-lives-chemical-sensitivity

Amelia Needs Us

 

Many of you are familiar with Amelia Hill, either via  my blog,  her blog, from her facebook group,  or from the several articles she has written or appeared in, where you can read about her most challenging circumstances and how she has worked so hard to not only survive them, but to overcome them and to help others who are hidden away going through similar challenges.

Amelia Hill

Amelia’s awesome mom Danija has contacted me to say that Amelia’s health has taken a real turn for the worse, and that she and her family have run out of funds to get her the very limited, specific foods and medical care Amelia urgently needs now.

A friend has started up a fundraiser where there are more details about what has happened and what is needed.

Please contribute if you can. Every little bit will help.

Amelia Hill’s Medical Fund

https://www.gofundme.com/amazingameliahill

If you can’t donate, then please keep Amelia in your hearts and prayers.

We LOVE you Amelia!
♥ ♥ ♥

P.S. I will keep you updated in the comments when I have more news to share.

Understanding Environmental Health

Dr Stephen Genuis is someone who has an excellent understanding about  environmental and public health.

He  now has a new website and has also started an easy to understand  video series on environmental health, where he  discusses causes, effects, and what can be done to help the growing numbers of us who experience environmentally linked chronic health challenges.

By “those of us” I (and he) mean many more people than conventional medicine considers to be environmentally affected, and he gives excellent examples of this  in the videos (as well as in his research papers).

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Research Survey: Are You Over 21 and ‘Sensitive’ to Environmental Pollutants?

Research Update

I’ve  previously posted about a research project Pamela Gibson from the James Madison University in Virginia was undertaking. She has been asking for women aged 65 and older who have experienced environmental sensitivities (chemical and/or electrical) to participate in an online study of how their needs are being met as they grow older with sensitivities, but due to a lack of participation from women over the age of 65 (does anyone want to guess why?) she has opened up the study to anyone over the age of 21.

WOMEN OVER AGE 65 STUDY MODIFIED TO INCLUDE PERSONS 21 OR OVER WITH ENVIRONMENTAL SENSITIVITIES
(CHEMICAL OR ELECTRICAL)

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Video: Fragrance Free Workplace: TRAILER

Alison Johnson has a new video coming out about the need for fragrance-free policies.

From her website:

Card available from Alison Johnson

Fragrance-Free Workplaces

A Video Produced / Written / Directed by Alison Johnson
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“This film covers not only fragrance issues but also presents an overview of multiple chemical sensitivity. It features Dr. L. Christine Oliver, an Associate Clinical Professor of Medicine at Harvard Medical School and former Co-Director of Occupational and Environmental Medicine at Massachusetts General Hospital. The film also contains footage of an interview with the former Commander of Walter Reed Army Medical Center, Dr. Ronald R. Blanck. People with MCS in the film include Gulf War veterans and survivors of the 9/11 WTC attacks, as well as people from all walks of life.”

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You can watch the trailer here:

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Unilever to Disclose Some (but not all) AXE and Other Fragrance Ingredients

Unilever, the company responsible for making disabling products like AXE (aka LYNX) has announced they will be expanding their product ingredient lists  to include fragrance ingredients above 0.01 percent (100 parts per million) in a product’s formulation (via the SmartLabel app, but not on the actual labels *)

Here’s what we need to know:

* 20 parts per million (ppm) is the FDA’s standard for ‘gluten-free’ *

Which means that people who are allergic or “sensitive” can suffer serious and life threatening effects from substances at well below 100 ppm, and we still won’t know what is causing the symptoms, or what we need to avoid to stay alive.

unilever-banner

This plan may help people who aren’t knowingly or immediately affected by fragrance exposures to choose their products more wisely, but it doesn’t go nearly far enough to help those of us who are disabled by or have life threatening reactions to their products.

Edited to add:

Unilever’s fragrance transparency is a major green-wash at 100 ppm, when gluten-free has to be below 20 ppm, and people with isothiazolinone (aka MI) allergy react to as little as 3 ppm, perhaps less.

Also,  long-term health limit for fumes from dry-cleaning solvents has dropped from 20 parts per billion to an infinitesimal 2 parts per billion because long-term exposure to even very low concentrations can result in cancer, as well as fetal development problems for pregnant women.

Other interesting tidbits about Unilever:

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Fragrance Chemicals: Weapons of Environmental and Human Destruction

We are surrounded by and saturated with fragrance chemicals now.

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Fragrance Chemicals:
Weapons of Destruction

(if you have been impacted, you know this is not hyperbole)

Most fragrances are now are made from oil and gas based chemicals.

They are in our personal care, laundry, and cleaning products. They are in garbage bags, candles, and shoes. They are in toys, fire-place logs, and diapers. They are in toilet paper, stationary, and stickers. They are in clothing, pillows, and jewellery. They are in foods, plastics, and medicines. They are in kitty litter, trash bags,  and vacuum cleaner bags. They are even in pesticides, where they are regulated by the EPA, but they are not regulated by anyone when they are added to all the other products we use and are exposed to!

There’s no escaping fragrance even when housebound, because so many  deliveries of even the basics like food, arrive fragrance contaminated!

We were not designed for 24/7 exposures to toxic chemicals

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How much more evidence is needed before something is done about the human and environmental health problems caused by fragranced productss?

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Here’s an info dump with some relevant links and videos:

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Fragranced Products: Risk to People and Profits

From Dr Anne Steinemann’s latest research
“Fragranced consumer products: exposures and effects from emissions”

“Basically, if it contained a fragrance, it posed problems for people” 

 

fragranced-risks

“This is a huge problem; it’s an epidemic”
says Professor Steinemann.

She is especially concerned with involuntary exposure to fragranced products, or what she calls “secondhand scents.

“Over 22% of Americans surveyed can’t go somewhere because exposure to a fragranced product would make them sick.”

“These findings have enormous implications for businesses, workplaces, care facilities, schools, homes, and other private and public places,” said Professor Steinemann. For instance, a growing number of lawsuits under the Americans with Disabilities Act concern involuntary and disabling exposure to fragranced products.”

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