First Municipal Government Adopts Life Saving Plan for People With MCS/ES, CFS/ME, and FM

Good news for some people who have MCS/ES, CFS/ME, and FM

Tarragona SPAIN

RESCUE PLAN FOR PEOPLE WITH CENTRAL SENSITIVITY SYNDROMES:

THE CITY OF TARRAGONA (CATALONIA, SPAIN) IS THE FIRST MUNICIPAL GOVERNMENT THAT IMPLEMENTS IT!

The first municipal government that has stepped forward to implement this plan, is the City of Tarragona Municipal Government (Tarragona is a major city 100 kilometres south of Barcelona). In the plenary session held last November 30th, the “Institutional Declaration of support for people with Central Sensitivity Syndromes” was approved, which consists of a concrete programme of measures. This is a historical step.

In part, the agreement includes:

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Accessible Meetings Guide Addresses Chemical and Electrical Sensitivities

Another great resource shared by Mary Lamielle, this time on how to make events accessible for people with MCS/ES.

Accessible Meetings Guide Addresses Chemical and Electrical Sensitivities

The new online resource from ADA Hospitality, Accessible Meetings, Events & Conferences addresses chemical and electrical sensitivities in their planning process.

“The guide is an updated version of a 1993 work authored by June Isaacson Kailes and Darrell Jones. The Mid-Atlantic ADA Center and TransCen Inc. sponsored the update and publication in recognition of the 25th anniversary of the ADA. The updated version includes both regulatory updates along with practical guidance from meeting planning professionals and subject matter experts.

Mary Lamielle, Executive Director of the National Center for Environmental Health Strategies (NCEHS), was invited to comment on the 1993 Guide for the update. She made extensive recommendations addressing the access needs of people with chemical and electrical sensitivities.

The following pages include the NCEHS fact sheet Planning an Accessible Meeting or Event for People with Environmental Sensitivities or Intolerances and recommendations that were incorporated into the just-issued guide. Those with environmental sensitivities are urged to use the fact sheet and the guide to substantiate individual disability accommodation needs and to ensure all meetings are healthier for everyone.”

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In a Doctor’s Own Words: A Toxic Legacy and 12,000 (+) Canaries Later

 

Dr. John Molot is a doctor who sees patients with complex, chronic, environmentally linked, and often disabling, health conditions. Although he is retiring from private practice, he is still a staff physician in the Environmental Health Clinic at Women’s College Hospital in Toronto.

He recently released a book, “12,000 Canaries Can’t Be Wrong“,  wrote a report in support of the Ontario Centre of Excellence in Environmental Health (OCEEH), and appears in a video presentation about the health effects of common  chemical exposures (see below).

Check these out:

12,000 Canaries Can’t be Wrong
What’s making you sick & what can you do about it

http://johnmolot.com/books/

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Harvard Medical School Associate Professor Speaks about MCS: Video

Dr. L. Christine Oliver is an Associate Professor of Clinical Medicine at Harvard Medical School and Co-Director of Occupational and Environmental Medicine at Massachusetts General Hospital.

This is an excellent half hour presentation.

Dr Oliver packs so much about the issues faced by people with MCS into the first 16 minutes of this video. If you can’t watch the whole video, at least watch this much.  Alison Johnson finishes off by reading from her important book Amputated Lives.

Alison Johnson is the author/producer/director of books and documentaries on Multiple Chemical Sensitivity. Visit http://www.alisonjohnsonmcs.com to download a transcript or to purchase her books or DVDs.

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Unilever to Disclose Some (but not all) AXE and Other Fragrance Ingredients

 

Unilever, the company responsible for making disabling products like AXE (aka LYNX) has announced they will be expanding their product ingredient lists  to include fragrance ingredients above 0.01 percent (100 parts per million) in a product’s formulation (via the SmartLabel app, but not on the actual labels *)

 

Here’s what we need to know:

 

* 20 parts per million (ppm) is the FDA’s standard for ‘gluten-free’ *

Which means that people who are allergic or “sensitive” can suffer serious and life threatening effects from substances at well below 100 ppm, and we still won’t know what is causing the symptoms, or what we need to avoid to stay alive.

 

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This plan may help people who aren’t knowingly or immediately affected by fragrance exposures to choose their products more wisely, but it doesn’t go nearly far enough to help those of us who are disabled by or have life threatening reactions to their products.

Other interesting tidbits about Unilever:

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Fragrance Chemicals: Weapons of Environmental and Human Destruction

We are surrounded by and saturated with fragrance chemicals now.

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Fragrance Chemicals:
Weapons of Destruction

(if you have been impacted, you know this is not hyperbole)

Most fragrances are now are made from oil and gas based chemicals.

They are in our personal care, laundry, and cleaning products. They are in garbage bags, candles, and shoes. They are in toys, fire-place logs, and diapers. They are in toilet paper, stationary, and stickers. They are in clothing, pillows, and jewellery. They are in foods, plastics, and medicines. They are in kitty litter, trash bags,  and vacuum cleaner bags. They are even in pesticides, where they are regulated by the EPA, but they are not regulated by anyone when they are added to all the other products we use and are exposed to!

There’s no escaping fragrance even when housebound, because so many  deliveries of even the basics like food, arrive fragrance contaminated!

We were not designed for 24/7 exposures to toxic chemicals

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How much more evidence is needed before something is done about the human and environmental health problems caused by fragranced productss?

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Here’s an info dump with some relevant links and videos:

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Fragranced Products: Risk to People and Profits

From Dr Anne Steinemann’s latest research
“Fragranced consumer products: exposures and effects from emissions”

“Basically, if it contained a fragrance, it posed problems for people” 

 

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“This is a huge problem; it’s an epidemic”
says Professor Steinemann.

She is especially concerned with involuntary exposure to fragranced products, or what she calls “secondhand scents.

“Over 22% of Americans surveyed can’t go somewhere because exposure to a fragranced product would make them sick.”

“These findings have enormous implications for businesses, workplaces, care facilities, schools, homes, and other private and public places,” said Professor Steinemann. For instance, a growing number of lawsuits under the Americans with Disabilities Act concern involuntary and disabling exposure to fragranced products.”

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Ontario Reported on MCS/ES in 1985, Yet…

MCS/ES is not new. Over 30 years ago, the Province of Ontario created the “Committee on Environmental Hypersensitivity” and appointed George Thomson, a former provincial court judge, as chairman, with a mandate to study and “advise the Ministry of Health on the occurrence of environmental hypersensitivity in Ontario and on current methods of diagnosis and treatment. Further, the committee was to make recommendations to the ministry concerning future approaches to treatment and research that should be taken”

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From the the Legislative Assembly of Ontario Official Records for 17 December 1985:

Hon. Mr. Elston: Members of this House may also recall a six-member committee which was appointed in November 1984 to study a disorder which is known as environmental hypersensitivity, or 20th-century disease. The condition has been described as multiple sensitivities or allergies to a wide range of foods, chemicals and environmental substances.

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The Pinktober Special You Don’t Want to Miss!

At long last, here’s your chance to see STINK for FREE!

Please don’t miss this!
What you see could literally save your life!

If you want to learn more about pink ribbons and pinktober, you can get Breast Cancer Action’s  “Think Before You Pink Toolkit” here.

And for everyone’s sake:

Be fragrance (and toxic chemical stink) free. It’s good for you! It’s good for me!

http://StinkMovie.com/

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Why I LOVE Having Environmental “Sensitivities”

Guest post

In all of this I don’t have a permanent place to stay and paid rent to a landlord who won’t fix anything, my apartment insurance cut me off and won’t help with my possessions, my medicare health insurance is not covering the health aspect and my one doctor wants me to see a doctor out of province which is not covered, and my social assistance did not pay me my disability this month, and family does not understand any of this….At this point I have nothing to lose and everything to gain….I AM MOVING FORWARD!

~ Marie LeBlanc, Manitoba, Canada

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How Big Is Your World?

How Big Is Your World?

The following questions are to help us think about how much space we have to enjoy, and what if it were to be taken away.

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