Good news for some people who have MCS/ES, CFS/ME, and FM
RESCUE PLAN FOR PEOPLE WITH CENTRAL SENSITIVITY SYNDROMES:
THE CITY OF TARRAGONA (CATALONIA, SPAIN) IS THE FIRST MUNICIPAL GOVERNMENT THAT IMPLEMENTS IT!
The first municipal government that has stepped forward to implement this plan, is the City of Tarragona Municipal Government (Tarragona is a major city 100 kilometres south of Barcelona). In the plenary session held last November 30th, the “Institutional Declaration of support for people with Central Sensitivity Syndromes” was approved, which consists of a concrete programme of measures. This is a historical step.
In part, the agreement includes:
Posted in Accessibility, Disability, Environmental Health, Government, Human Rights, MCS/ES, ME/CFS, Policy
Tagged CFS/ME, EHS, environmental sensitivities, fibromyalgia, FM, invisible disabilities, MCS, MCS/ES, multiple chemical sensitivities
Another great resource shared by Mary Lamielle, this time on how to make events accessible for people with MCS/ES.
Accessible Meetings Guide Addresses Chemical and Electrical Sensitivities
The new online resource from ADA Hospitality, Accessible Meetings, Events & Conferences addresses chemical and electrical sensitivities in their planning process.
“The guide is an updated version of a 1993 work authored by June Isaacson Kailes and Darrell Jones. The Mid-Atlantic ADA Center and TransCen Inc. sponsored the update and publication in recognition of the 25th anniversary of the ADA. The updated version includes both regulatory updates along with practical guidance from meeting planning professionals and subject matter experts.
Mary Lamielle, Executive Director of the National Center for Environmental Health Strategies (NCEHS), was invited to comment on the 1993 Guide for the update. She made extensive recommendations addressing the access needs of people with chemical and electrical sensitivities.
The following pages include the NCEHS fact sheet Planning an Accessible Meeting or Event for People with Environmental Sensitivities or Intolerances and recommendations that were incorporated into the just-issued guide. Those with environmental sensitivities are urged to use the fact sheet and the guide to substantiate individual disability accommodation needs and to ensure all meetings are healthier for everyone.”
Posted in Accessibility, Disability, Environmental Health, Environmental Sensitivities, Healthy Environment, Human Rights, Policy
Tagged access, barriers, conferences, EHS, electrical sensitivities, events, fragrance-free policy, IAQ, inclusion, MCS, MCS/ES, meetings, National Center for Environmental Health Strategies, wireless
Dr. John Molot is a doctor who sees patients with complex, chronic, environmentally linked, and often disabling, health conditions. Although he is retiring from private practice, he is still a staff physician in the Environmental Health Clinic at Women’s College Hospital in Toronto.
He recently released a book, “12,000 Canaries Can’t Be Wrong“, wrote a report in support of the Ontario Centre of Excellence in Environmental Health (OCEEH), and appears in a video presentation about the health effects of common chemical exposures (see below).
Check these out:
12,000 Canaries Can’t be Wrong
What’s making you sick & what can you do about it
Posted in Chemicals, Disability, Environmental Health, Fragrance, Health, MCS/ES, Pollution
Tagged allergies, autism, canaries, cancer, chronic illness, Dr. Molot, environment, fibromyalgia, health care access for people with MCS/ES, Human Rights, indoor air quality, MCS/ES, multiple chemical sensitivities, OCEEH, petrochemicals, sensitivities, toxic chemicals
Dr. L. Christine Oliver is an Associate Professor of Clinical Medicine at Harvard Medical School and Co-Director of Occupational and Environmental Medicine at Massachusetts General Hospital.
This is an excellent half hour presentation.
Dr Oliver packs so much about the issues faced by people with MCS into the first 16 minutes of this video. If you can’t watch the whole video, at least watch this much. Alison Johnson finishes off by reading from her important book Amputated Lives.
Alison Johnson is the author/producer/director of books and documentaries on Multiple Chemical Sensitivity. Visit http://www.alisonjohnsonmcs.com to download a transcript or to purchase her books or DVDs.
Posted in Accessibility, Disability, Environmental Health, Health Care, Multiple Chemical Sensitivities, Public Health
Tagged chemical exposures, environmental sensitivities, Fragrance, fragrance-free policy, health, health care access for people with MCS/ES, Housing, indoor air quality, MCS and CDC, MCS video, MCS/ES, sensitive to pollution, smoke-free, suicide, video
How Big Is Your World?
The following questions are to help us think about how much space we have to enjoy, and what if it were to be taken away.
Posted in Disability, Housing, Human Rights, Environmental Sensitivities, Environmental Health, Imagination, Accessibility, Community
Tagged MCS/ES, MCS, environmental sensitivities, invisible disabilities, allergies, chemical sensitivity, IAQ
I saw this photograph on facebook of Richard Gere and Roshi Joan Halifax hugging (at the Mind and Life “Power and Care” conference), which to me exemplifies the best kind of (adult to adult) hug we humans could have.
Richard Gere and Roshi Joan Halifax
I haven’t been able to stop looking at it… and it made me start trying to remember when the last time I was able to hug someone was.
I don’t think it was in 2010 when I left Toronto, as I was so sick then, and I didn’t have any spare clothes to risk contaminating them with 2nd and 3rd hand fragrance chemicals. Continue reading
Posted in Accessibility, Air Quality, Chemicals, Community, Disability, Environmental Health, Fragrance, Human Rights, Pollution, Toxic Trespass
Tagged chemical sensitivity, environmental sensitivities, hazardous air pollutants, invisible disabilities, isolation, laundry, MCS, MCS/ES, pesticides, petrochemicals, solitary
A few of us in the MCS community have been burning the proverbial candle at both ends and in the middle, trying to generate public awareness and interest to persuade the NS housing authority to reconsider their 3 year battle to evict our good friend Wendy, despite no accessible alternatives being available.
Their unwillingness to understand and accommodate her disability and her medical team’s recommendations… well, it’s something a lot of us have faced and are facing.
Posted in Accessibility, Action, Disability, Environmental Health, Friendship, Housing, Human Rights, Medically Required Housing, Support
Tagged #LetWendyStay, environmental illness, environmental sensitivities, fragrance-free, homelessness, invisible disabilities, MCS, MCS housing, petrochemicals, saving lives, systemic discrimination
Imagine if that were to happen?
How many people have peanut allergies?
“In the U.S., approximately three million people report allergies to peanuts and tree nuts. Studies show the number of children living with peanut allergy appears to have tripled between 1997 and 2008.”
The rise in peanut (and other food) allergies has been linked to the rise of toxic chemicals used by the food industry. Fragrances are also full of toxic chemicals.
How many people have fragrance allergies or “sensitivities”?
Posted in Accessibility, Air Quality, Child Health, Disability, Environmental Health, Food, Fragrance, Health, Human Rights
Tagged allergies, asthma, environmental sensitivities, fragrance chemicals, hazardous air pollutants, MCS, MCS/ES, peanuts, schools, toxic trespass, wireless, wireless dangers
Imagine being disabled (as if drugged, dysfunctional, and definitely disbelieved more often than not) from exposures to legally allowed toxic chemicals in everyday products and materials…. or from wireless signals coming from neighbourhood wifi networks and cell towers…
Now imagine that some of us don’t have to imagine this scenario, because we can feel our brains and bodies being harmed by the exposures just like canaries in the mines did.
Imagine being confined to a safe bubble of a home to avoid disabling exposures, Continue reading
Posted in Accessibility, Disability, Environmental Health, Human Rights, Pollution, Public Health
Tagged allergies, asthma, cancer, EHS, fragrance chemicals, hazardous air pollutants, Housing, IAQ, invisible disabilities, MCS, pesticides, petrochemicals, sensitive to pollution
Why do people who lose their health from being polluted and poisoned for profit end up being forced into isolation and invisibility in order to try to remain alive?
Posted in Accessibility, Air Quality, Disability, Environmental Health, Environmental Sensitivities, Pollution
Tagged allergies, asthma, cancer, chemical sensitivity, Chemicals, fibromyalgia, Fragrance, hazardous air pollutants, Human Rights, invisible disabilities, MCS, MCS/ES, petrochemicals, toxic trespass, VOCs
As more people become chemically “sensitive”, different types of human rights scenarios emerge. In their latest elearning module, the Ontario Human Rights Commission has included a case study with someone who “has been diagnosed with a chemical sensitivity disability”.
Some people think that our need for clean air interferes or competes with their imagined right to use toxic products, especially those with fragrances, but no, there is no inherent right to wear perfume or use other fragranced products!
Sometimes, though, someone may need to use a product for a disabling condition of their own. The problems arise if that product has fragrances (or some other problematic ingredients) added which cause disabling effects on another person, as the following case study from the Ontario Human Rights Commission (OHRC) shows.
Competing rights at the office
Posted in Accessibility, Disability, Environmental Health, Environmental Sensitivities, Fragrance, Human Rights
Tagged chemical sensitivity, MCS, MCS/ES, migraines, multiple chemical sensitivities, perfumes