First Municipal Government Adopts Life Saving Plan for People With MCS/ES, CFS/ME, and FM

Good news for some people who have MCS/ES, CFS/ME, and FM

Tarragona SPAIN

RESCUE PLAN FOR PEOPLE WITH CENTRAL SENSITIVITY SYNDROMES:

THE CITY OF TARRAGONA (CATALONIA, SPAIN) IS THE FIRST MUNICIPAL GOVERNMENT THAT IMPLEMENTS IT!

The first municipal government that has stepped forward to implement this plan, is the City of Tarragona Municipal Government (Tarragona is a major city 100 kilometres south of Barcelona). In the plenary session held last November 30th, the “Institutional Declaration of support for people with Central Sensitivity Syndromes” was approved, which consists of a concrete programme of measures. This is a historical step.

In part, the agreement includes:

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Accessible Meetings Guide Addresses Chemical and Electrical Sensitivities

Another great resource shared by Mary Lamielle, this time on how to make events accessible for people with MCS/ES.

Accessible Meetings Guide Addresses Chemical and Electrical Sensitivities

The new online resource from ADA Hospitality, Accessible Meetings, Events & Conferences addresses chemical and electrical sensitivities in their planning process.

“The guide is an updated version of a 1993 work authored by June Isaacson Kailes and Darrell Jones. The Mid-Atlantic ADA Center and TransCen Inc. sponsored the update and publication in recognition of the 25th anniversary of the ADA. The updated version includes both regulatory updates along with practical guidance from meeting planning professionals and subject matter experts.

Mary Lamielle, Executive Director of the National Center for Environmental Health Strategies (NCEHS), was invited to comment on the 1993 Guide for the update. She made extensive recommendations addressing the access needs of people with chemical and electrical sensitivities.

The following pages include the NCEHS fact sheet Planning an Accessible Meeting or Event for People with Environmental Sensitivities or Intolerances and recommendations that were incorporated into the just-issued guide. Those with environmental sensitivities are urged to use the fact sheet and the guide to substantiate individual disability accommodation needs and to ensure all meetings are healthier for everyone.”

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In a Doctor’s Own Words: A Toxic Legacy and 12,000 (+) Canaries Later

 

Dr. John Molot is a doctor who sees patients with complex, chronic, environmentally linked, and often disabling, health conditions. Although he is retiring from private practice, he is still a staff physician in the Environmental Health Clinic at Women’s College Hospital in Toronto.

He recently released a book, “12,000 Canaries Can’t Be Wrong“,  wrote a report in support of the Ontario Centre of Excellence in Environmental Health (OCEEH), and appears in a video presentation about the health effects of common  chemical exposures (see below).

Check these out:

12,000 Canaries Can’t be Wrong
What’s making you sick & what can you do about it

http://johnmolot.com/books/

12000Canaries_hiRessm

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Harvard Medical School Associate Professor Speaks about MCS: Video

Dr. L. Christine Oliver is an Associate Professor of Clinical Medicine at Harvard Medical School and Co-Director of Occupational and Environmental Medicine at Massachusetts General Hospital.

This is an excellent half hour presentation.

Dr Oliver packs so much about the issues faced by people with MCS into the first 16 minutes of this video. If you can’t watch the whole video, at least watch this much.  Alison Johnson finishes off by reading from her important book Amputated Lives.

Alison Johnson is the author/producer/director of books and documentaries on Multiple Chemical Sensitivity. Visit http://www.alisonjohnsonmcs.com to download a transcript or to purchase her books or DVDs.

amputated-lives-chemical-sensitivity

Words Images Life Art Dance

While following the events at Standing Rock, I ran across something that impressed me that was shared from the “Dancing Earth” fb page,  and so I began following them  (please do check them out if you like powerful dance images).

At the end of April, just before MCS/ES Awareness Month was to begin, Dancing Earth posted the image below, and it made me stop in my tracks (as I scrolled through my fb newsfeed). I returned to it over and over again, and I finally asked for permission to share it here, and for the  back story about how it came to be.

This image!


Songs From The Extraction Zones
Rulan Tangen at Santa Fe Arts Institute

I kept hoping to find the words to describe why I find it to be such a powerful image, and why I feel such a personal connection to it, but I’ve been struggling from the effects of too much pollution on my brain. Pesticides, laundry products, and who knows what else have been taking their toll on my ability to string words together to do this the justice I feel it deserves, so this will not be as eloquent as I had hoped it would be, but I still want to share this with you, and maybe you will find some of your own words, or just sit with the feelings.

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MCS/ES 2017 Continued: The Canaries Are Still Waiting!

The canaries are still waiting!

“We issued a report (in 1985) that identified existing, publicly funded means of diagnosis, and accepted various methods of patient management, including avoidance of offending agents.

We did not feel that more research was needed before these and other measures were introduced to protect patients from being caused harm through inappropriate labelling or the denial of reasonable accommodation.”

Excerpted from this letter by Judge George M. Thomson, B.A., LL.B., LL.M., who chaired the extensive report by the Ad Hoc Committee on Environmental Hypersensitivity Disorders for the Province of Ontario in 1985:

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Endangered Human Art Project: Bringing Awareness to Chemical Sensitivity

WHO Says We Need Fresh Air?!

Guest Post from Marie LeBlanc

Bringing awareness to chemical sensitivity
Marie LeBlanc at the Centennial Concert Hall in Winnipeg. May 12th 2017.

I am an artist  in Winnipeg who lives with multiple chemical sensitivity (MCS) and environmental illness caused by mold exposure. My art has been in relation to multiple chemical sensitivity (MCS)/Environmental Illness (EI) and toxic environments.

“WHO says we need fresh air?!” is a series of quotes from sufferers of Multiple Chemical Sensitivity, Environmental Illness, Mold Exposure, Electrohypersensitivity Syndrome, Lyme Disease and other conditions related to Chronic/Complex Immunological Neurological Diseases.

The art installation was on display during the evening of Fri. May 12, on Multiple Chemical Sensitivity (MCS)/Environmental Sensitivities Awareness Day,  outside the Centennial Concert Hall (with a few quotes displayed on the indoor screens), and is dedicated to my friend Eliana from Mexico.

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Dr Molot Urges Everyone to Support the Canaries

Please take a minute and eleven seconds  to watch this video from Dr.  John Molot where he talks about MCS (multiple chemical sensitivities) and how we (the people who developed MCS) have been stigmatized and that we really are canaries. He speaks about some of the other serious health problems the chemicals that disable us are causing in those who do not have MCS.
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If you don’t know who Dr Molot is, you can read a bio  here and check out the SStP blog post here.
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You can register for the video seminars he speaks of here:
It’s free – you will be sent the link to watch the seminar videos and be informed of upcoming workshops and resources too, but you can unsubscribe at any time.
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Please share this and do look into the work that Dr Molot and EHA Quebec are doing on everyone’s behalf!
Thank you all!

An MCS Awareness Visualization

May 12th is International MCS Awareness Day, and May is MCS Awareness Month.  Many people who have MCS also have  MCAS – Mast Cell Activation Syndrome, where chemical and other exposures cause anaphylaxis.

Guest Post from Raven Galarza de Gold

My request for you to visualize:

I’d like to ask each of my friends to sit in a quiet space for just 15 minutes and close your eyes. Breathe and get calm and relaxed.

Now I want you to think of yourself only. Visualize yourself in your body. Once you see or feel you, I want you to see yourself  Continue reading

Profile Pictures for Awareness Month

These images are available on facebook. Feel free to download the appropriate one and use for Awareness Month, or at least for May 12th Awareness Day!

Profile pics for MCS/ES Awareness Month Support – Choose from the #MCSchallenge profile pic or do the #MaskChallenge OR do both!

Posted by Seriously "Sensitive" to Pollution on Tuesday, May 2, 2017

 

Please join us in letting the world know we exist!
We have important wisdom to share with everyone!

 “Delegitimizing those with ES-MCS, who may be warning us all of the need for toxics reduction, also tends to impede development of practical, precautionary, potentially preventive and cost-saving public health strategies.”

http://www.womenscollegehospital.ca/assets/legacy/wch/pdfs/ESMCSStatusReportJune22011.pdf

MCS Mask Challenge for Family, Friends, and You!

Here’s an easy way for everyone to show some support!

And maybe, just maybe, wearing a mask for an hour or a day will spread some understanding of  why the people who fought for smoke free policies did that instead of expecting all non-smokers to just wear masks always and everywhere.

The Mask Challenge is brought to you by

Memes For Inconvenient Disabilities

Help us make May 2017 the last time that we ever hear or read the words:

“MCS? #NeverHeardOfIt!!”

#MaskChallenge! Do it! Grow #MCSAwareness!

Watch the video and read the transcript below:

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