Good news for some people who have MCS/ES, CFS/ME, and FM
RESCUE PLAN FOR PEOPLE WITH CENTRAL SENSITIVITY SYNDROMES:
THE CITY OF TARRAGONA (CATALONIA, SPAIN) IS THE FIRST MUNICIPAL GOVERNMENT THAT IMPLEMENTS IT!
The first municipal government that has stepped forward to implement this plan, is the City of Tarragona Municipal Government (Tarragona is a major city 100 kilometres south of Barcelona). In the plenary session held last November 30th, the “Institutional Declaration of support for people with Central Sensitivity Syndromes” was approved, which consists of a concrete programme of measures. This is a historical step.
In part, the agreement includes:
Posted in Accessibility, Disability, Environmental Health, Government, Human Rights, MCS/ES, ME/CFS, Policy
Tagged CFS/ME, EHS, environmental sensitivities, fibromyalgia, FM, invisible disabilities, MCS, MCS/ES, multiple chemical sensitivities
Another great resource shared by Mary Lamielle, this time on how to make events accessible for people with MCS/ES.
Accessible Meetings Guide Addresses Chemical and Electrical Sensitivities
The new online resource from ADA Hospitality, Accessible Meetings, Events & Conferences addresses chemical and electrical sensitivities in their planning process.
“The guide is an updated version of a 1993 work authored by June Isaacson Kailes and Darrell Jones. The Mid-Atlantic ADA Center and TransCen Inc. sponsored the update and publication in recognition of the 25th anniversary of the ADA. The updated version includes both regulatory updates along with practical guidance from meeting planning professionals and subject matter experts.
Mary Lamielle, Executive Director of the National Center for Environmental Health Strategies (NCEHS), was invited to comment on the 1993 Guide for the update. She made extensive recommendations addressing the access needs of people with chemical and electrical sensitivities.
The following pages include the NCEHS fact sheet Planning an Accessible Meeting or Event for People with Environmental Sensitivities or Intolerances and recommendations that were incorporated into the just-issued guide. Those with environmental sensitivities are urged to use the fact sheet and the guide to substantiate individual disability accommodation needs and to ensure all meetings are healthier for everyone.”
Posted in Accessibility, Disability, Environmental Health, Environmental Sensitivities, Healthy Environment, Human Rights, Policy
Tagged access, barriers, conferences, EHS, electrical sensitivities, events, fragrance-free policy, IAQ, inclusion, MCS, MCS/ES, meetings, National Center for Environmental Health Strategies, wireless
Dr. John Molot is a doctor who sees patients with complex, chronic, environmentally linked, and often disabling, health conditions. Although he is retiring from private practice, he is still a staff physician in the Environmental Health Clinic at Women’s College Hospital in Toronto.
He recently released a book, “12,000 Canaries Can’t Be Wrong“, wrote a report in support of the Ontario Centre of Excellence in Environmental Health (OCEEH), and appears in a video presentation about the health effects of common chemical exposures (see below).
Check these out:
12,000 Canaries Can’t be Wrong
What’s making you sick & what can you do about it
Posted in Chemicals, Disability, Environmental Health, Fragrance, Health, MCS/ES, Pollution
Tagged allergies, autism, canaries, cancer, chronic illness, Dr. Molot, environment, fibromyalgia, health care access for people with MCS/ES, Human Rights, indoor air quality, MCS/ES, multiple chemical sensitivities, OCEEH, petrochemicals, sensitivities, toxic chemicals
Dr. L. Christine Oliver is an Associate Professor of Clinical Medicine at Harvard Medical School and Co-Director of Occupational and Environmental Medicine at Massachusetts General Hospital.
This is an excellent half hour presentation.
Dr Oliver packs so much about the issues faced by people with MCS into the first 16 minutes of this video. If you can’t watch the whole video, at least watch this much. Alison Johnson finishes off by reading from her important book Amputated Lives.
Alison Johnson is the author/producer/director of books and documentaries on Multiple Chemical Sensitivity. Visit http://www.alisonjohnsonmcs.com to download a transcript or to purchase her books or DVDs.
Posted in Accessibility, Disability, Environmental Health, Health Care, Multiple Chemical Sensitivities, Public Health
Tagged chemical exposures, environmental sensitivities, Fragrance, fragrance-free policy, health, health care access for people with MCS/ES, Housing, indoor air quality, MCS and CDC, MCS video, MCS/ES, sensitive to pollution, smoke-free, suicide, video
The Province of Ontario’s Ministry of Health and Long Term Care’s long awaited Environmental Health Task Force Interim Report has finally been released!
“We found that, throughout the health care system and in society at large, there is:
•a lack of recognition of the seriousness and severity of these conditions
•a profound shortage of knowledgeable care providers
•a dearth of clinical tools to support and guide care
•a discouraging shortage of services and supports for people living with these conditions
•an absence of support for family caregivers.
The lack of knowledge and appropriate accessible care has devastating effects on Ontarians struggling with ME/CFS, FM and ES/MCS.
For those living with ME/CFS, FM and ES/MCS, the lack of recognition of these serious and debilitating conditions is as harmful as the lack of treatments. …
We urge the Minister to act now to raise awareness of these conditions and address the barriers that keep people with ME/CFS, FM and ES/MCS from getting the care and services they need.”
From the press release:
Posted in Accessibility, Action, Environmental Health, Health Care, Human Rights, Policy
Tagged AODA, environmental sensitivities, ES/MCS, fibromyalgia, FM, hospitals, invisible disabilities, MCS, MCS/ES, ME/CFS, mental health, multiple chemical sensitivities, multiple chemical sensitivity, OHIP, Ontario
Shared by Doug Atwood
In June 2017, we lost a friend and active member of our community.
We need an easily recognizable accessibility symbol for non-toxic, wireless, VOC, scent, and fragrance-free places that show they are accessible to people with MCS/ES, asthma, COPD, migraines, and others who need healthy environments in order to remain functional and not become physically or cognitively impaired.
These signs would be used only in places that actually enforce the policies.
The standard accessibility signs have white symbols on blue backgrounds like these:
I’ve never seen anything like this to signify healthy wireless, scent, and fragrance-free indoor air, but these are some others I have found or assembled that might give a designer ideas to run with:
Posted in Accessibility, Air Quality, Environmental Health, Environmental Sensitivities, Fragrance, Health Promotion, Healthy Environment, Images, Policy, Public Health
Tagged accessibility barriers, allergies, asthma, chemical sensitivity, fragrance-free, hazardous air pollutants, Human Rights, IAQ, MCS, MCS/ES, petrochemicals, toxic trespass, wireless
A song by Jonathan Richman
I had never heard of Jonathan Richman before this song about not being able to walk outside at night because of dryer sheets, fabric softener, air “fresheners”, and having to close doors and windows because of them, so I looked him up and found he had done a song about cell phones too. Here they are:
Posted in Accessibility, Air Quality, chemicals in clothing, Environmental Health, Environmental Sensitivities, Wireless
Tagged cell phones, dryer sheets, EHS, fabric softeners, housebound, MCS, MCS/ES, music, prisoner, video
My article “Invisible Barriers, Invisible Disabilities, Invisible People” is now available to read in the
Special Issue on Ecopsychology and Environmental Sensitivities:
Chemical, Electrical, and Beyond
All the articles in the entire special issue will be available for free until Sept. 5 2017, which is unprecedented access!
Please check them out and share as widely as possible!
Table of Contents:
Posted in Disability, Environmental Health, Environmental Sensitivities, Human Rights, Public Health
Tagged chemical sensitivity, ecopsychology, EHS, environment, fibromyalgia, Gibson, health, invisible disabilities, MCS, MCS/ES, multiple chemical sensitivities, Ontario, petrochemicals, Research, systemic discrimination, toxic chemicals, toxic trespass
I ran across some striking photos by Alex Kisilevich (you can see them in the banner above if you squint) and I shared the link with the intro “Food for thought… what’s outside the bubble preventing access?” Someone responded with “tell me about it”, so I wrote a short story before seeing what the photographer’s intent was, if it was indeed as a writer wrote, to say:
Posted in Accessibility, Air Quality, Environmental Health, Fragrance, Human Rights, Public Health
Tagged allergies, asthma, autism, bubble, cancer, chemical sensitivity, EHS, environmental sensitivities, hazardous air pollutants, health, invisible disabilities, MCS, MCS/ES, petrochemicals, toxic chemicals, toxic trespass
It’s hard to get anyone to take the time to read (let alone understand) scientific research, but it’s so important that we educate ourselves when the opportunity arises. People have short attention spans these days, probably from all the neurotoxins and wireless radiation we’re all being exposed to on a daily basis, so it’s great when we find information that is short and to the point.
Here is a great short video series from
the UCSF Program on Reproductive Health and the Environment.
Please watch and share!
Posted in Child Health, Education, Environmental Health, Health, Pollution, Public Health, Toxic Trespass
Tagged allergies, asthma, autism, cancer, Chemicals, hazardous air pollutants, IAQ, neurotoxins, petrochemicals, phthalates, Research, science, toxic, toxic chemicals, toxic trespass, video