Good news for some people who have MCS/ES, CFS/ME, and FM
RESCUE PLAN FOR PEOPLE WITH CENTRAL SENSITIVITY SYNDROMES:
THE CITY OF TARRAGONA (CATALONIA, SPAIN) IS THE FIRST MUNICIPAL GOVERNMENT THAT IMPLEMENTS IT!
The first municipal government that has stepped forward to implement this plan, is the City of Tarragona Municipal Government (Tarragona is a major city 100 kilometres south of Barcelona). In the plenary session held last November 30th, the “Institutional Declaration of support for people with Central Sensitivity Syndromes” was approved, which consists of a concrete programme of measures. This is a historical step.
In part, the agreement includes:
Posted in Accessibility, Disability, Environmental Health, Government, Human Rights, MCS/ES, ME/CFS, Policy
Tagged CFS/ME, EHS, environmental sensitivities, fibromyalgia, FM, invisible disabilities, MCS, MCS/ES, multiple chemical sensitivities
Another great resource shared by Mary Lamielle, this time on how to make events accessible for people with MCS/ES.
Accessible Meetings Guide Addresses Chemical and Electrical Sensitivities
The new online resource from ADA Hospitality, Accessible Meetings, Events & Conferences addresses chemical and electrical sensitivities in their planning process.
“The guide is an updated version of a 1993 work authored by June Isaacson Kailes and Darrell Jones. The Mid-Atlantic ADA Center and TransCen Inc. sponsored the update and publication in recognition of the 25th anniversary of the ADA. The updated version includes both regulatory updates along with practical guidance from meeting planning professionals and subject matter experts.
Mary Lamielle, Executive Director of the National Center for Environmental Health Strategies (NCEHS), was invited to comment on the 1993 Guide for the update. She made extensive recommendations addressing the access needs of people with chemical and electrical sensitivities.
The following pages include the NCEHS fact sheet Planning an Accessible Meeting or Event for People with Environmental Sensitivities or Intolerances and recommendations that were incorporated into the just-issued guide. Those with environmental sensitivities are urged to use the fact sheet and the guide to substantiate individual disability accommodation needs and to ensure all meetings are healthier for everyone.”
Posted in Accessibility, Disability, Environmental Health, Environmental Sensitivities, Healthy Environment, Human Rights, Policy
Tagged access, barriers, conferences, EHS, electrical sensitivities, events, fragrance-free policy, IAQ, inclusion, MCS, MCS/ES, meetings, National Center for Environmental Health Strategies, wireless
Dr. John Molot is a doctor who sees patients with complex, chronic, environmentally linked, and often disabling, health conditions. Although he is retiring from private practice, he is still a staff physician in the Environmental Health Clinic at Women’s College Hospital in Toronto.
He recently released a book, “12,000 Canaries Can’t Be Wrong“, wrote a report in support of the Ontario Centre of Excellence in Environmental Health (OCEEH), and appears in a video presentation about the health effects of common chemical exposures (see below).
Check these out:
12,000 Canaries Can’t be Wrong
What’s making you sick & what can you do about it
Posted in Chemicals, Disability, Environmental Health, Fragrance, Health, MCS/ES, Pollution
Tagged allergies, autism, canaries, cancer, chronic illness, Dr. Molot, environment, fibromyalgia, health care access for people with MCS/ES, Human Rights, indoor air quality, MCS/ES, multiple chemical sensitivities, OCEEH, petrochemicals, sensitivities, toxic chemicals
Dr. L. Christine Oliver is an Associate Professor of Clinical Medicine at Harvard Medical School and Co-Director of Occupational and Environmental Medicine at Massachusetts General Hospital.
This is an excellent half hour presentation.
Dr Oliver packs so much about the issues faced by people with MCS into the first 16 minutes of this video. If you can’t watch the whole video, at least watch this much. Alison Johnson finishes off by reading from her important book Amputated Lives.
Alison Johnson is the author/producer/director of books and documentaries on Multiple Chemical Sensitivity. Visit http://www.alisonjohnsonmcs.com to download a transcript or to purchase her books or DVDs.
Posted in Accessibility, Disability, Environmental Health, Health Care, Multiple Chemical Sensitivities, Public Health
Tagged chemical exposures, environmental sensitivities, Fragrance, fragrance-free policy, health, health care access for people with MCS/ES, Housing, indoor air quality, MCS and CDC, MCS video, MCS/ES, sensitive to pollution, smoke-free, suicide, video
My article “Invisible Barriers, Invisible Disabilities, Invisible People” is now available to read in the
Special Issue on Ecopsychology and Environmental Sensitivities:
Chemical, Electrical, and Beyond
All the articles in the entire special issue will be available for free until Sept. 5 2017, which is unprecedented access!
Please check them out and share as widely as possible!
Table of Contents:
Posted in Disability, Environmental Health, Environmental Sensitivities, Human Rights, Public Health
Tagged chemical sensitivity, ecopsychology, EHS, environment, fibromyalgia, Gibson, health, invisible disabilities, MCS, MCS/ES, multiple chemical sensitivities, Ontario, petrochemicals, Research, systemic discrimination, toxic chemicals, toxic trespass
I ran across some striking photos by Alex Kisilevich (you can see them in the banner above if you squint) and I shared the link with the intro “Food for thought… what’s outside the bubble preventing access?” Someone responded with “tell me about it”, so I wrote a short story before seeing what the photographer’s intent was, if it was indeed as a writer wrote, to say:
Posted in Accessibility, Air Quality, Environmental Health, Fragrance, Human Rights, Public Health
Tagged allergies, asthma, autism, bubble, cancer, chemical sensitivity, EHS, environmental sensitivities, hazardous air pollutants, health, invisible disabilities, MCS, MCS/ES, petrochemicals, toxic chemicals, toxic trespass
It’s hard to get anyone to take the time to read (let alone understand) scientific research, but it’s so important that we educate ourselves when the opportunity arises. People have short attention spans these days, probably from all the neurotoxins and wireless radiation we’re all being exposed to on a daily basis, so it’s great when we find information that is short and to the point.
Here is a great short video series from
the UCSF Program on Reproductive Health and the Environment.
Please watch and share!
Posted in Child Health, Education, Environmental Health, Health, Pollution, Public Health, Toxic Trespass
Tagged allergies, asthma, autism, cancer, Chemicals, hazardous air pollutants, IAQ, neurotoxins, petrochemicals, phthalates, Research, science, toxic, toxic chemicals, toxic trespass, video
If you need safe (non-toxic) kitchen or other cabinets, here’s a brilliant idea with the basic how-to from Margaret Forrest at her new blog Build A Healthy House.
Because kitchen cabinetry is normally made from engineered materials like mdf, plywood, or particleboard, people with chemical sensitivities have to find other solutions that will be safe for them. Some people have their cabinets crafted out of solid wood and seal the wood with a safe sealer like AFM Safeseal or other product that they tolerate. Others find all metal cabinetry.
My original plan was to build my cabinets out of poplar then finish them with milk paint and a safe sealer. Unfortunately, my husband and I were camping on our land while the house was being built so I had no wood shop. While lying under the stars one night thinking/obsessing over the problem of how I was going to accomplish this project outside, I kept coming back to the same issue: how was I going to keep the wood from molding? One of our ongoing struggles living outside…
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While following the events at Standing Rock, I ran across something that impressed me that was shared from the “Dancing Earth” fb page, and so I began following them (please do check them out if you like powerful dance images).
At the end of April, just before MCS/ES Awareness Month was to begin, Dancing Earth posted the image below, and it made me stop in my tracks (as I scrolled through my fb newsfeed). I returned to it over and over again, and I finally asked for permission to share it here, and for the back story about how it came to be.
“Songs From The Extraction Zones”
Rulan Tangen at Santa Fe Arts Institute
I kept hoping to find the words to describe why I find it to be such a powerful image, and why I feel such a personal connection to it, but I’ve been struggling from the effects of too much pollution on my brain. Pesticides, laundry products, and who knows what else have been taking their toll on my ability to string words together to do this the justice I feel it deserves, so this will not be as eloquent as I had hoped it would be, but I still want to share this with you, and maybe you will find some of your own words, or just sit with the feelings.
Posted in Community, Environment, Environmental Health, Environmental Sensitivities, Imagination, Pollution
Tagged art, cancer, chemical sensitivity, Dancing Earth, fossil fuels, health, MCS, petrochemicals, respirators and masks, Rulan Tangen, sacred, toxic trespass, Water
The canaries are still waiting!
“We issued a report (in 1985) that identified existing, publicly funded means of diagnosis, and accepted various methods of patient management, including avoidance of offending agents.
We did not feel that more research was needed before these and other measures were introduced to protect patients from being caused harm through inappropriate labelling or the denial of reasonable accommodation.”
Excerpted from this letter by Judge George M. Thomson, B.A., LL.B., LL.M., who chaired the extensive report by the Ad Hoc Committee on Environmental Hypersensitivity Disorders for the Province of Ontario in 1985:
Posted in Environmental Health, Environmental Sensitivities, Human Rights, Pollution, Public Health
Tagged canaries, chemical sensitivity, Fragrance, fragrance-free, hazardous air pollutants, health, invisible disabilities, MCS, MCS/ES, multiple chemical sensitivities, petrochemicals, toxic trespass
WHO Says We Need Fresh Air?!
Guest Post from Marie LeBlanc
Bringing awareness to chemical sensitivity
Marie LeBlanc at the Centennial Concert Hall in Winnipeg. May 12th 2017.
I am an artist in Winnipeg who lives with multiple chemical sensitivity (MCS) and environmental illness caused by mold exposure. My art has been in relation to multiple chemical sensitivity (MCS)/Environmental Illness (EI) and toxic environments.
“WHO says we need fresh air?!” is a series of quotes from sufferers of Multiple Chemical Sensitivity, Environmental Illness, Mold Exposure, Electrohypersensitivity Syndrome, Lyme Disease and other conditions related to Chronic/Complex Immunological Neurological Diseases.
The art installation was on display during the evening of Fri. May 12, on Multiple Chemical Sensitivity (MCS)/Environmental Sensitivities Awareness Day, outside the Centennial Concert Hall (with a few quotes displayed on the indoor screens), and is dedicated to my friend Eliana from Mexico.
Posted in Accessibility, Disability, Environment, Environmental Health, Health, Housing, Human Rights
Tagged allergies, anaphylaxis, asthma, chemical sensitivity, chemicals in clothing, CIND, creativity, EHS, environmental illness, environmental sensitivities, Fragrance, hazardous air pollutants, homeless, Housing, invisible disabilities, Lyme Disease, MCS, MCS/ES, Mold, multiple chemical sensitivities, suicide, toxic chemicals