Good news for some people who have MCS/ES, CFS/ME, and FM
RESCUE PLAN FOR PEOPLE WITH CENTRAL SENSITIVITY SYNDROMES:
THE CITY OF TARRAGONA (CATALONIA, SPAIN) IS THE FIRST MUNICIPAL GOVERNMENT THAT IMPLEMENTS IT!
The first municipal government that has stepped forward to implement this plan, is the City of Tarragona Municipal Government (Tarragona is a major city 100 kilometres south of Barcelona). In the plenary session held last November 30th, the “Institutional Declaration of support for people with Central Sensitivity Syndromes” was approved, which consists of a concrete programme of measures. This is a historical step.
In part, the agreement includes:
Posted in Accessibility, Disability, Environmental Health, Government, Human Rights, MCS/ES, ME/CFS, Policy
Tagged CFS/ME, EHS, environmental sensitivities, fibromyalgia, FM, invisible disabilities, MCS, MCS/ES, multiple chemical sensitivities
Another great resource shared by Mary Lamielle, this time on how to make events accessible for people with MCS/ES.
Accessible Meetings Guide Addresses Chemical and Electrical Sensitivities
The new online resource from ADA Hospitality, Accessible Meetings, Events & Conferences addresses chemical and electrical sensitivities in their planning process.
“The guide is an updated version of a 1993 work authored by June Isaacson Kailes and Darrell Jones. The Mid-Atlantic ADA Center and TransCen Inc. sponsored the update and publication in recognition of the 25th anniversary of the ADA. The updated version includes both regulatory updates along with practical guidance from meeting planning professionals and subject matter experts.
Mary Lamielle, Executive Director of the National Center for Environmental Health Strategies (NCEHS), was invited to comment on the 1993 Guide for the update. She made extensive recommendations addressing the access needs of people with chemical and electrical sensitivities.
The following pages include the NCEHS fact sheet Planning an Accessible Meeting or Event for People with Environmental Sensitivities or Intolerances and recommendations that were incorporated into the just-issued guide. Those with environmental sensitivities are urged to use the fact sheet and the guide to substantiate individual disability accommodation needs and to ensure all meetings are healthier for everyone.”
Posted in Accessibility, Disability, Environmental Health, Environmental Sensitivities, Healthy Environment, Human Rights, Policy
Tagged access, barriers, conferences, EHS, electrical sensitivities, events, fragrance-free policy, IAQ, inclusion, MCS, MCS/ES, meetings, National Center for Environmental Health Strategies, wireless
Dr. John Molot is a doctor who sees patients with complex, chronic, environmentally linked, and often disabling, health conditions. Although he is retiring from private practice, he is still a staff physician in the Environmental Health Clinic at Women’s College Hospital in Toronto.
He recently released a book, “12,000 Canaries Can’t Be Wrong“, wrote a report in support of the Ontario Centre of Excellence in Environmental Health (OCEEH), and appears in a video presentation about the health effects of common chemical exposures (see below).
Check these out:
12,000 Canaries Can’t be Wrong
What’s making you sick & what can you do about it
Posted in Chemicals, Disability, Environmental Health, Fragrance, Health, MCS/ES, Pollution
Tagged allergies, autism, canaries, cancer, chronic illness, Dr. Molot, environment, fibromyalgia, health care access for people with MCS/ES, Human Rights, indoor air quality, MCS/ES, multiple chemical sensitivities, OCEEH, petrochemicals, sensitivities, toxic chemicals
Dr. L. Christine Oliver is an Associate Professor of Clinical Medicine at Harvard Medical School and Co-Director of Occupational and Environmental Medicine at Massachusetts General Hospital.
This is an excellent half hour presentation.
Dr Oliver packs so much about the issues faced by people with MCS into the first 16 minutes of this video. If you can’t watch the whole video, at least watch this much. Alison Johnson finishes off by reading from her important book Amputated Lives.
Alison Johnson is the author/producer/director of books and documentaries on Multiple Chemical Sensitivity. Visit http://www.alisonjohnsonmcs.com to download a transcript or to purchase her books or DVDs.
Posted in Accessibility, Disability, Environmental Health, Health Care, Multiple Chemical Sensitivities, Public Health
Tagged chemical exposures, environmental sensitivities, Fragrance, fragrance-free policy, health, health care access for people with MCS/ES, Housing, indoor air quality, MCS and CDC, MCS video, MCS/ES, sensitive to pollution, smoke-free, suicide, video
While following the events at Standing Rock, I ran across something that impressed me that was shared from the “Dancing Earth” fb page, and so I began following them (please do check them out if you like powerful dance images).
At the end of April, just before MCS/ES Awareness Month was to begin, Dancing Earth posted the image below, and it made me stop in my tracks (as I scrolled through my fb newsfeed). I returned to it over and over again, and I finally asked for permission to share it here, and for the back story about how it came to be.
“Songs From The Extraction Zones”
Rulan Tangen at Santa Fe Arts Institute
I kept hoping to find the words to describe why I find it to be such a powerful image, and why I feel such a personal connection to it, but I’ve been struggling from the effects of too much pollution on my brain. Pesticides, laundry products, and who knows what else have been taking their toll on my ability to string words together to do this the justice I feel it deserves, so this will not be as eloquent as I had hoped it would be, but I still want to share this with you, and maybe you will find some of your own words, or just sit with the feelings.
Posted in Community, Environment, Environmental Health, Environmental Sensitivities, Imagination, Pollution
Tagged art, cancer, chemical sensitivity, Dancing Earth, fossil fuels, health, MCS, petrochemicals, respirators and masks, Rulan Tangen, sacred, toxic trespass, Water
The canaries are still waiting!
“We issued a report (in 1985) that identified existing, publicly funded means of diagnosis, and accepted various methods of patient management, including avoidance of offending agents.
We did not feel that more research was needed before these and other measures were introduced to protect patients from being caused harm through inappropriate labelling or the denial of reasonable accommodation.”
Excerpted from this letter by Judge George M. Thomson, B.A., LL.B., LL.M., who chaired the extensive report by the Ad Hoc Committee on Environmental Hypersensitivity Disorders for the Province of Ontario in 1985:
Posted in Environmental Health, Environmental Sensitivities, Human Rights, Pollution, Public Health
Tagged canaries, chemical sensitivity, Fragrance, fragrance-free, hazardous air pollutants, health, invisible disabilities, MCS, MCS/ES, multiple chemical sensitivities, petrochemicals, toxic trespass
WHO Says We Need Fresh Air?!
Guest Post from Marie LeBlanc
Bringing awareness to chemical sensitivity
Marie LeBlanc at the Centennial Concert Hall in Winnipeg. May 12th 2017.
I am an artist in Winnipeg who lives with multiple chemical sensitivity (MCS) and environmental illness caused by mold exposure. My art has been in relation to multiple chemical sensitivity (MCS)/Environmental Illness (EI) and toxic environments.
“WHO says we need fresh air?!” is a series of quotes from sufferers of Multiple Chemical Sensitivity, Environmental Illness, Mold Exposure, Electrohypersensitivity Syndrome, Lyme Disease and other conditions related to Chronic/Complex Immunological Neurological Diseases.
The art installation was on display during the evening of Fri. May 12, on Multiple Chemical Sensitivity (MCS)/Environmental Sensitivities Awareness Day, outside the Centennial Concert Hall (with a few quotes displayed on the indoor screens), and is dedicated to my friend Eliana from Mexico.
Posted in Accessibility, Disability, Environment, Environmental Health, Health, Housing, Human Rights
Tagged allergies, anaphylaxis, asthma, chemical sensitivity, chemicals in clothing, CIND, creativity, EHS, environmental illness, environmental sensitivities, Fragrance, hazardous air pollutants, homeless, Housing, invisible disabilities, Lyme Disease, MCS, MCS/ES, Mold, multiple chemical sensitivities, suicide, toxic chemicals
Please take a minute and eleven seconds to watch this video from Dr. John Molot where he talks about MCS (multiple chemical sensitivities) and how we (the people who developed MCS) have been stigmatized and that we really are canaries. He speaks about some of the other serious health problems the chemicals that disable us are causing in those who do not have MCS.
If you don’t know who Dr Molot is, you can read a bio here
and check out the SStP blog post here.
You can register for the video seminars he speaks of here:
It’s free – you will be sent the link to watch the seminar videos and be informed of upcoming workshops and resources too, but you can unsubscribe at any time.
Please share this and do look into the work that Dr Molot and EHA Quebec are doing on everyone’s behalf!
Thank you all!
Posted in Education, Environmental Health, Health, Human Rights, Public Health
Tagged allergies, asthma, cancer, chemical sensitivity, Chemicals, environment, fibromyalgia, invisible disabilities, MCS, MCS/ES, multiple chemical sensitivities, Research, video
May 12th is International MCS Awareness Day, and May is MCS Awareness Month. Many people who have MCS also have MCAS – Mast Cell Activation Syndrome, where chemical and other exposures cause anaphylaxis.
Guest Post from Raven Galarza de Gold
My request for you to visualize:
I’d like to ask each of my friends to sit in a quiet space for just 15 minutes and close your eyes. Breathe and get calm and relaxed.
Now I want you to think of yourself only. Visualize yourself in your body. Once you see or feel you, I want you to see yourself Continue reading
Posted in Community, Disability, Environmental Health, Housing, Human Rights, Imagination, Pollution
Tagged allergies, anaphylaxis, chemical sensitivity, Chemicals, environmental illness, environmental sensitivities, Fragrance, health effects, Housing, invisible disabilities, MCS, MCS/ES, pesticides, petrochemicals
These images are available on facebook. Feel free to download the appropriate one and use for Awareness Month, or at least for May 12th Awareness Day!
Please join us in letting the world know we exist!
We have important wisdom to share with everyone!
“Delegitimizing those with ES-MCS, who may be warning us all of the need for toxics reduction, also tends to impede development of practical, precautionary, potentially preventive and cost-saving public health strategies.”
Posted in Accessibility, Action, Education, Environmental Health, Environmental Sensitivities, Friendship, Images, Multiple Chemical Sensitivities, Support
Tagged allergies, asthma, chemical sensitivity, EHS, environment, invisible disabilities, masks, MCS, MCS/ES, multiple chemical sensitivities, petrochemicals, sensitive to pollution
Here’s an easy way for everyone to show some support!
And maybe, just maybe, wearing a mask for an hour or a day will spread some understanding of why the people who fought for smoke free policies did that instead of expecting all non-smokers to just wear masks always and everywhere.
The Mask Challenge is brought to you by
Help us make May 2017 the last time that we ever hear or read the words:
#MaskChallenge! Do it! Grow #MCSAwareness!
Watch the video and read the transcript below:
Posted in Accessibility, Action, Air Quality, Environmental Health, Fragrance, Pollution, Public Health
Tagged activism, awareness, chemical sensitivity, environmental sensitivities, IAQ, invisible disabilities, masks, MCS, multiple chemical sensitivities, petrochemicals, support, toxic trespass, video