11 Reasons To Stop Using Fragrances and Implement Fragrance-free Policies

Here are 11 excellent  reasons to stop using and allowing fragrances in your home, at work,  in healthcare, in housing, at school, in transportation, in retail, and in other public places:

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First Municipal Government Adopts Life Saving Plan for People With MCS/ES, CFS/ME, and FM

Good news for some people who have MCS/ES, CFS/ME, and FM

Tarragona SPAIN



The first municipal government that has stepped forward to implement this plan, is the City of Tarragona Municipal Government (Tarragona is a major city 100 kilometres south of Barcelona). In the plenary session held last November 30th, the “Institutional Declaration of support for people with Central Sensitivity Syndromes” was approved, which consists of a concrete programme of measures. This is a historical step.

In part, the agreement includes:

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Accessible Meetings Guide Addresses Chemical and Electrical Sensitivities

Another great resource shared by Mary Lamielle, this time on how to make events accessible for people with MCS/ES.

Accessible Meetings Guide Addresses Chemical and Electrical Sensitivities

The new online resource from ADA Hospitality, Accessible Meetings, Events & Conferences addresses chemical and electrical sensitivities in their planning process.

“The guide is an updated version of a 1993 work authored by June Isaacson Kailes and Darrell Jones. The Mid-Atlantic ADA Center and TransCen Inc. sponsored the update and publication in recognition of the 25th anniversary of the ADA. The updated version includes both regulatory updates along with practical guidance from meeting planning professionals and subject matter experts.

Mary Lamielle, Executive Director of the National Center for Environmental Health Strategies (NCEHS), was invited to comment on the 1993 Guide for the update. She made extensive recommendations addressing the access needs of people with chemical and electrical sensitivities.

The following pages include the NCEHS fact sheet Planning an Accessible Meeting or Event for People with Environmental Sensitivities or Intolerances and recommendations that were incorporated into the just-issued guide. Those with environmental sensitivities are urged to use the fact sheet and the guide to substantiate individual disability accommodation needs and to ensure all meetings are healthier for everyone.”

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Harvard Medical School Associate Professor Speaks about MCS: Video

Dr. L. Christine Oliver is an Associate Professor of Clinical Medicine at Harvard Medical School and Co-Director of Occupational and Environmental Medicine at Massachusetts General Hospital.

This is an excellent half hour presentation.

Dr Oliver packs so much about the issues faced by people with MCS into the first 16 minutes of this video. If you can’t watch the whole video, at least watch this much.  Alison Johnson finishes off by reading from her important book Amputated Lives.

Alison Johnson is the author/producer/director of books and documentaries on Multiple Chemical Sensitivity. Visit http://www.alisonjohnsonmcs.com to download a transcript or to purchase her books or DVDs.


Canary Separates and Onesies aka Hazmat Gear

A few of us were talking about the steps some of us canaries have to take to be able to go places: masks, respirators, scarves to cover hair, lab coats, long skirts, outdoor only clothes that are removed before entering our safe homes, and clothes  that are  never worn inside due to picking up so much 2nd and 3rd hand fragrance contamination.

And  the removal and bagging for later washing of everything we did wear or have with us, and the showers we have to take as soon as we get home.

Then there’s the lunch kits and other accessories we need to pack, but that’s another blog post or three.

I’ve posted before about using tyvek suits, both to wear in order to protect us from exposures when we go out, or to have others wear to protect us from exposures to their products off-gassing when we need them to enter our space.

This time though, someone mentioned that they wanted to go to an event that lasted long enough that they would need to use the washroom while out, so a one piece tyvek suit wasn’t going to cut it.

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There Is No Right to Wear Fragranced Products

“there is no right to wear fragranced products”

Accommodation for Environmental Sensitivities: Legal Perspective
2007 Canadian Human Rights Commission

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Ontario’s Task Force Releases its Phase 1 Recommendations to help people suffering from chemical sensitivity but health ministry abdicates again. Here’s a new take on that report.

An important update on the situation in Ontario, from Varda Burstyn, one of the original members of the Task Force on Environmental Health.

Please read and share, and find a way to put pressure on the elected reps, and if possible, get much needed media attention on this travesty of justice!

Note too that it’s not just for us, it’s a public health issue when over 50% of children have chronic health problems (including preschool kids with disabling anxiety), and something like 2/3 of the population on at least one pharmaceutical drug. We know that removing the cause of the problem results in better health than ineffectively trying to manage some symptoms!

When the canaries are ignored, public health suffers!

Dispatches from The Chemical Edge

Hundreds of thousands are sick – and after 33 years, Ontario government again declines to implement basic measures of care

 Extracted pages from task_force_on_environmental_health_report

“These three environmental health conditions typically have a devastating impact on the individuals affected. Unfortunately, our health care system too often has not helped them to the extent they need. The report of the Task Force sets out a course that will begin to remedy this. I look forward to seeing the Minister’s response to our report, and urge him to respond quickly and decisively. There is a need for strong leadership.“ Neil Stuart, Vice-Chair of the Task Force.

Few people have any idea of the number of people in Ontario afflicted with the debilitating, painful, often co-occurring and even life-threatening conditions of Environmental Sensitivity/Multiple Chemical Sensitivities (about 310,000), Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (about 215,000) and Fibromyalgia (about 196,800). But it turns out that, in total, there are a…

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tis the season

Wishing you all some Happiness during the  Holidays!

May all beings have clean air, clean water, healthy organic food, and safe and healthy shelter! All that and love, lots and lots of love!

Acts of Festive Kindness

Christmas, Birthdays, and Other Holidays with MCS/ES

For most people, these special occasions are times of joy and celebration in the company of friends and loved ones, but for people with invisible disabilities and chronic illnesses like MCS/ES, they can be sad reminders of the lives that we no longer have  access to.

We are still seldom  included in the festivities and are usually left alone to fend for ourselves. Unfortunately, since human beings are social beings, not everyone is well equipped to self occupy, and  some people become seriously depressed and even suicidal because of this.

To realize it’s because some friends, family, neighbours, and co-workers prefer to keep using certain products instead of using other products so we can safely be around them and enjoy their company,  makes it even harder for us, knowing they care more about the products they buy than they care about us. It’s a heart breaking thing to have to live with.


  Thankfully, not everyone chooses products over people 


Before I became too chemically injured to socialize in crowds, I had a wonderful friend who happily made the effort to make her place and parties safe for me!

In 2005  her invites were all sent out with these words:

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Statement From ARCH and CELA re MCS, ES, and the Ontario Task Force on Environmental Health

The ARCH Disability Law Centre and the Canadian Environmental Law Association (CELA) announced in September of 2016 that they were working on a report about the challenges faced by people with multiple chemical and/or environmental sensitivities.

ARCH Alert September 2016

“ARCH, in collaboration with the Canadian Environmental Law Association (CELA), has been working on a report about the challenges faced by people with multiple chemical and/or environmental sensitivities.  Our report was informed by consultations with persons who experience these disabilities. 

One of our major findings is the significant extent of attitudinal barriers faced by this group of people.  Often, they find that they are not believed when they ask that scents, fragrances or other products not be worn in the workplace, educational settings, health care settings or places where services are received.  We believe that a large awareness campaign is needed to educate the public about the impact of these disabilities on all aspects of a person’s life.”


The release of their report has been delayed because they want to respond to the Ontario Task Force on Environmental Health’s Interim Report, which came out just when their own report was intended for release.

In the November 2017 issue of Arch Alert, both ARCH and CELA  urge the Task Force to do more consultations with those of us who are living the experience:

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