Canadian Statistics on MCS/ES

According to Statistics Canada, between 2005 and 2010 the rates of people diagnosed with Multiple Chemical Sensitivities, Fibromyalgia and Chronic Fatigue Syndrome in Canada increased significantly.

The number of people diagnosed with MCS increased by 31%

The number of people diagnosed with FM increased by 15%

The number of people diagnosed with CFS increased by 24%

As far as I know, they are no longer collecting information about these conditions, so updated prevalence statistics may not be forthcoming, despite these alarming increases and every indication that the amount of people being affected will continue to rise.

2011 StatsCan MCS FM CFS

That’s 800,500 people who have been diagnosed with MCS/ES in Canada in 2010.

Let’s not forget that receiving a proper diagnosis is still very difficult, as most doctors know very little if anything about it. Additionally, some people don’t seek official diagnosis knowing the current lack of understanding, or are too severely affected to access the health care professionals who could officially diagnose them.

ES-MCS Sensitivities Status Report (see link below)

The report by the Environmental Health Clinic, in Ontario, mentions:

“It has been extremely challenging to assist EHC patients in Ontario to obtain adequate ongoing care in their communities when primary care physicians, specialists, and other local healthcare/homecare professionals have had little training in environmental health.”

The EHC has a virtually perpetual six to eight month waiting list, is unable to offer urgent or ongoing treatment, and generally cannot provide consultations for children or out-of-province residents.

Canada has one paediatric environmental health consulting clinic integrated into a  regular multi-function paediatric clinic in Edmonton, Alberta, affiliated with the  University of Alberta and a group of Paediatric Environmental Health Specialty Units in  the U.S.

The Nova Scotia Environmental Health Centre (NSEHC) is located in Fall River just outside Halifax, Nova Scotia.

Prevalence of Multiple Chemical Sensitivity and Other Long Term Conditions
(From online Statistics Canada-based prevalence reports, 13/08/2010, compiled by L. Marshall)
Long Term Health Condition Prevalence over age 12 or 15 (CCHS, 2000-2003)
Multiple Sclerosis 0.24%
AIDS 0.4%
Breast Cancer 1%
All cancers 2.6%
Multiple Chemical Sensitivity 2.4% (1.4% men, 3.4 % women)
Type 2 Diabetes 3-4%
Heart Disease 5.4% men, 4.6% women
Arthritis/Rheumatism 16% (2/3 women)

Like almost any medical condition, people may be mildly, moderately or severely affected, and those more mildly affected may not present for medical care. Also, it takes  time for educational programs for healthcare professionals to be developed after a relatively newly observed illness has been reported, and so diagnoses may be less frequently made and the condition under-reported. Researchers in three U.S. states therefore also asked randomly selected adults if they thought themselves to be “unusually” or “especially” sensitive and if they felt ill on exposure to low-level everyday chemicals. In California and New Mexico, 16% said yes

The prevalence of MCS in children under age 12 has never been studied

Interestingly enough

The 2005 National Survey of the Work and Health of Nurses revealed that 3.6% of all Canadian nurses, predominantly women, experienced chemical sensitivities

For ES-MCS sufferers the ideal of ‘patient-centred care’ is currently in stark contrast to realities within the health care system. Knowledgeable healthcare professionals and support workers are so few as to be virtually inaccessible most of the time. For moderately or severely chemically sensitive persons, physicians’ offices, clinics and hospitals commonly are unsafe places to wait, consult, or undergo procedures because patients can be exposed to many symptom triggers emitted from furnishings, cleaning and laundry products, disinfectants, and personal care products on staff or other patients, making their conditions worse. Fragrance/scent-free hospital, home care and rehabilitation services are very rarely available, and there are no
chemically safe emergency shelters. Consequently, patients with severe chemical sensitivities may avoid seeking care, risking further deterioration and chronicity, thereby being “caught between a rock and a hard place.”

In this time of health professional shortages and increasing demand by an aging population, it is also difficult to get knowledgeable ongoing medical or surgical care for complex multisystem health problems such as ES-MCS, and patients may still be disbelieved and ignored.
The results include poor health outcomes and higher health care costs, both for the patient and for the health care system.

Having MCS alone is bad enough, sadly though, too many people also have FM, and or CFS/ME along with MCS, in addition to other chronic conditions. Accessing health care to treat any of these is extremely difficult when one has MCS/ES.

Frequencies of MCS Co-diagnoses for Canadian Target Population*

– Chronic condition
– % of people with MCS having this additional diagnosis…
– % of target population having this diagnosis…

Other allergies (not food) 61.1   26.6
Other back problems (not arthritis or fibromyalgia) 39.7   18.8
Arthritis/rheumatism 38.5   16.4
Food Allergies 27.3   7.2
Migraine headache 26.3   10.5
Asthma 25.7   8.3
High blood pressure 24.5   14.9
Mood disorder 15.9   5.6
Anxiety Disorder 14.5   4.4
Thyroid condition 13.8   5.6
Bowel disorder 13.1   3.9
Bronchitis 11.4   2.5
Fibromyalgia 10.0   1.4
Chronic Fatigue Syndrome 9.9   1.2
Heart disease 9.8   4.7
Cataracts 9.1   4.2
Stomach/Intestinal ulcers 8.9   3.1
Diabetes 6.9   4.9
Glaucoma 3.9   1.5
Effects of stroke 2.5   1.1
Cancer 2.3   1.4
Epilepsy 1.3   0.6

* “Delegitimizing those with ES-MCS, who may be warning us all of the need for toxics reduction, also tends to impede development of practical, precautionary, potentially preventive and cost-saving public health strategies.”

http://www.womenscollegehospital.ca/assets/legacy/wch/pdfs/ESMCSStatusReportJune22011.pdf

2010 canada stats

Advertisements

11 responses to “Canadian Statistics on MCS/ES

  1. Hi Linda. I have just put this on my main facebook news feed. I meant to direct it to the Gillian McCarthy Den group page. If you could put it up on that page I would be grateful. Very informative and useful. Tony

    • Tony, thanks! I posted it there. I need to share the new Den video here too.

      Heather, I ran across the info when I was looking for something else and remembered I’ve been meaning to put this up here for ages! It isn’t easy to find…

      Nat, it’s so difficult for us to have the energy and brain power at the same time, and the lack of general awareness makes it difficult for others to help. I think as more people are adversely affected by all the toxic chemicals in everyday products and materials, we’ll receive more support.

      For example, Tony, who also commented here, is doing something no-one before him has managed to do – to build a safe den for Gillian! (I’ve written about that here https://lindasepp.wordpress.com/2012/12/12/gillians-den/ and will post an update soon.)

  2. YOU ARE AWESOME. Thank you for taking the sppons to do this.

  3. All us chemically sensitive have got to get together & do something! Protest/ get on the news to create awareness!!

  4. Thank you, Linda!! Highly useful data over here. I’m so glad I dropped in. I’m so slow at everything… I have Fibromyalgia, MCS and Fatigue. I lose so many valuable hours of my life, and I’m no longer young! I have to watch over my husband, who has had dementia for about 15 years. He had 3 major cardiac surgeries and he came out of the last one with full-blown dementia, aged 78. Of course there were signs before that, but nobody believed me, not even his doctors. But I lived with him, so I noticed he did strange things, got lost once or twice, etc. My own syndromes started with Fibro, MCS followed and now I have days of total fatigue and low blood pressure. I admire you very much, Linda. My best wishes to you, I’m so glad you found your safe house, Blessings and take care!

    • Thank you Sylvia!
      The lost hours turned into lost months and years for me, but I’m slowly able to use some time instead of it just drifting away in the fogs… For this home and the resulting health improvements I am very grateful.
      So many challenges for you! I wish for you and your husband all the help you need!

  5. bottom line, how many EHS and MSC are they in CANADA?

    Thanks

    amirb

  6. Agnes vanSpronsen

    One of your first comments caught my eye. This survey is being done for at least 10 years. My son took part in it in the fall of 2012, and we just received his report back this past month.

    • Hi Agnes.
      I don’t really understand your comment.
      Was your son asked about MCS, FM or CFS/ME by StatsCanada last fall?
      Did they or someone else send you a report?

  7. Pingback: Hospital Protocols for People With MCS/ES | Seriously "Sensitive" to Pollution

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s