Marie Leblanc, an artist from Winnipeg who is living with MCS/ES herself, is compiling information and statements to put into an MCS awareness project. There are two ideas to contribute to.
The easier one is to share shorter personal statements about your life with MCS/ES and related environmentally linked health conditions, which will be projected onto walls in a way similar to the photo below.
The other project involves answering 6 questions:
Posted in Environmental Sensitivities, Environmental Health, Action
Tagged Mold, EHS, MCS, multiple chemical sensitivities, creativity, invisible disabilities, fibromyalgia, chemical sensitivity, art, awareness, May 12
Many of you are familiar with Amelia Hill, either via my blog, her blog, from her facebook group, or from the several articles she has written or appeared in, where you can read about her most challenging circumstances and how she has worked so hard to not only survive them, but to overcome them and to help others who are hidden away going through similar challenges.
Amelia’s awesome mom Danija has contacted me to say that Amelia’s health has taken a real turn for the worse, and that she and her family have run out of funds to get her the very limited, specific foods and medical care Amelia urgently needs now.
A friend has started up a fundraiser where there are more details about what has happened and what is needed.
Please contribute if you can. ♥ Every little bit will help.
Amelia Hill’s Medical Fund
If you can’t donate, then please keep Amelia in your hearts and prayers.
We LOVE you Amelia!
♥ ♥ ♥
P.S. I will keep you updated in the comments when I have more news to share.
Posted in Community, Disability, Environmental Health, Environmental Sensitivities, Friendship, Gifts, Health, ME/CFS, Multiple Chemical Sensitivities, Pesticides
Tagged allergies, chemical sensitivity, health care access for people with MCS/ES, Human Rights, MCS
I’ve previously posted about a research project Pamela Gibson from the James Madison University in Virginia was undertaking. She has been asking for women aged 65 and older who have experienced environmental sensitivities (chemical and/or electrical) to participate in an online study of how their needs are being met as they grow older with sensitivities, but due to a lack of participation from women over the age of 65 (does anyone want to guess why?) she has opened up the study to anyone over the age of 21.
WOMEN OVER AGE 65 STUDY MODIFIED TO INCLUDE PERSONS 21 OR OVER WITH ENVIRONMENTAL SENSITIVITIES
(CHEMICAL OR ELECTRICAL)
Alison Johnson has a new video coming out about the need for fragrance-free policies.
From her website:
Card available from Alison Johnson
A Video Produced / Written / Directed by Alison Johnson
“This film covers not only fragrance issues but also presents an overview of multiple chemical sensitivity. It features Dr. L. Christine Oliver, an Associate Clinical Professor of Medicine at Harvard Medical School and former Co-Director of Occupational and Environmental Medicine at Massachusetts General Hospital. The film also contains footage of an interview with the former Commander of Walter Reed Army Medical Center, Dr. Ronald R. Blanck. People with MCS in the film include Gulf War veterans and survivors of the 9/11 WTC attacks, as well as people from all walks of life.”
You can watch the trailer here:
Posted in Accessibility, Air Quality, Environmental Health, Environmental Sensitivities, Fragrance, Health, Human Rights, Public Health
Tagged Alison Johnson, allergies, Anne Steinemann, asthma, chemical sensitivity, Chemicals, fragrance-free, hazardous air pollutants, IAQ, MCS, multiple chemical sensitivities, petrochemicals, video
MCS/ES is not new. Over 30 years ago, the Province of Ontario created the “Committee on Environmental Hypersensitivity” and appointed George Thomson, a former provincial court judge, as chairman, with a mandate to study and “advise the Ministry of Health on the occurrence of environmental hypersensitivity in Ontario and on current methods of diagnosis and treatment. Further, the committee was to make recommendations to the ministry concerning future approaches to treatment and research that should be taken”
From the the Legislative Assembly of Ontario Official Records for 17 December 1985:
Hon. Mr. Elston: Members of this House may also recall a six-member committee which was appointed in November 1984 to study a disorder which is known as environmental hypersensitivity, or 20th-century disease. The condition has been described as multiple sensitivities or allergies to a wide range of foods, chemicals and environmental substances.
Posted in Disability, Environmental Health, Environmental Sensitivities, Human Rights, Multiple Chemical Sensitivities, Policy, Pollution, Public Health
Tagged canaries, genocide, invisible disabilities, MCS, Ontario, petrochemicals, Research, sensitivities
In all of this I don’t have a permanent place to stay and paid rent to a landlord who won’t fix anything, my apartment insurance cut me off and won’t help with my possessions, my medicare health insurance is not covering the health aspect and my one doctor wants me to see a doctor out of province which is not covered, and my social assistance did not pay me my disability this month, and family does not understand any of this….At this point I have nothing to lose and everything to gain….I AM MOVING FORWARD!
~ Marie LeBlanc, Manitoba, Canada
Posted in Accessibility, Air Quality, Community, Disability, Ecocide, Environmental Health, Environmental Sensitivities, Health Care, Housing, Human Rights, Inspiration, Policy, Pollution
Tagged genocide, hazardous air pollutants, health care access for people with MCS/ES, homeless, Housing, IAQ, invisible disabilities, medically required housing, Mold, petrochemicals, positive thinking, systemic barriers, systemic discrimination, toxic trespass
How Big Is Your World?
The following questions are to help us think about how much space we have to enjoy, and what if it were to be taken away.
Posted in Accessibility, Community, Disability, Environmental Health, Environmental Sensitivities, Housing, Human Rights, Imagination
Tagged allergies, chemical sensitivity, environmental sensitivities, IAQ, invisible disabilities, MCS, MCS/ES