Category Archives: Friendship

tis the season

Wishing you all some Happiness during the  Holidays!

May all beings have clean air, clean water, healthy organic food, and safe and healthy shelter! All that and love, lots and lots of love!

Advertisements

Acts of Festive Kindness

Christmas, Birthdays, and Other Holidays with MCS/ES

For most people, these special occasions are times of joy and celebration in the company of friends and loved ones, but for people with invisible disabilities and chronic illnesses like MCS/ES, they can be sad reminders of the lives that we no longer have  access to.

We are still seldom  included in the festivities and are usually left alone to fend for ourselves. Unfortunately, since human beings are social beings, not everyone is well equipped to self occupy, and  some people become seriously depressed and even suicidal because of this.

To realize it’s because some friends, family, neighbours, and co-workers prefer to keep using certain products instead of using other products so we can safely be around them and enjoy their company,  makes it even harder for us, knowing they care more about the products they buy than they care about us. It’s a heart breaking thing to have to live with.

 

  Thankfully, not everyone chooses products over people 

 

Before I became too chemically injured to socialize in crowds, I had a wonderful friend who happily made the effort to make her place and parties safe for me!

In 2005  her invites were all sent out with these words:

Continue reading

Françoise Gourd 1950 – 2017

Shared by Doug Atwood

In June 2017, we lost a friend and active member of our community.


Françoise Gourd

 

Continue reading

Profile Pictures for Awareness Month

These images are available on facebook. Feel free to download the appropriate one and use for Awareness Month, or at least for May 12th Awareness Day!

Profile pics for MCS/ES Awareness Month Support – Choose from the #MCSchallenge profile pic or do the #MaskChallenge OR do both!

Posted by Seriously "Sensitive" to Pollution on Tuesday, May 2, 2017

 

Please join us in letting the world know we exist!
We have important wisdom to share with everyone!

 “Delegitimizing those with ES-MCS, who may be warning us all of the need for toxics reduction, also tends to impede development of practical, precautionary, potentially preventive and cost-saving public health strategies.”

http://www.womenscollegehospital.ca/assets/legacy/wch/pdfs/ESMCSStatusReportJune22011.pdf

Amelia Needs Us

 

Many of you are familiar with Amelia Hill, either via  my blog,  her blog, from her facebook group,  or from the several articles she has written or appeared in, where you can read about her most challenging circumstances and how she has worked so hard to not only survive them, but to overcome them and to help others who are hidden away going through similar challenges.

Amelia Hill

Amelia’s awesome mom Danija has contacted me to say that Amelia’s health has taken a real turn for the worse, and that she and her family have run out of funds to get her the very limited, specific foods and medical care Amelia urgently needs now.

A friend has started up a fundraiser where there are more details about what has happened and what is needed.

Please contribute if you can. Every little bit will help.

Amelia Hill’s Medical Fund

https://www.gofundme.com/amazingameliahill

If you can’t donate, then please keep Amelia in your hearts and prayers.

We LOVE you Amelia!
♥ ♥ ♥

P.S. I will keep you updated in the comments when I have more news to share.

When a Friend’s Life Is Being Threatened

Guest Post

A few of us in the MCS community have been burning the proverbial candle at both ends and in the middle, trying to generate public awareness and interest to persuade the NS housing authority to reconsider their 3 year battle to evict our good friend Wendy, despite no accessible alternatives being available.

Their unwillingness to understand and accommodate her disability and her medical team’s recommendations… well, it’s something a lot of us have faced and are facing.

Continue reading

Loneliness, Posttraumatic Growth, and Invisible Disabilities

Amelia Hill shared an eloquent post about enduring and working with loneliness (see below).  Amelia and I are both  housebound (and have been so for years), but she is currently confined to a much smaller space in her home than I am in mine.

loneliness - Amelia HillFrom Heal Amelia’s Life:

Loneliness. I’ve kinda learned to override the often relentless waves of loneliness one feels living an isolated existence like mine.I don’t deny the feelings of loneliness or push them down in an unhealthy way. But it’s more like a repetitive cycle of acknowledging it & letting it go, acknowledging it & letting it go. It’s how I survive.

Continue reading