Category Archives: Friendship

Françoise Gourd 1950 – 2017

Shared by Doug Atwood

In June 2017, we lost a friend and active member of our community.


Françoise Gourd

 

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Profile Pictures for Awareness Month

These images are available on facebook. Feel free to download the appropriate one and use for Awareness Month, or at least for May 12th Awareness Day!

Profile pics for MCS/ES Awareness Month Support – Choose from the #MCSchallenge profile pic or do the #MaskChallenge OR do both!

Posted by Seriously "Sensitive" to Pollution on Tuesday, May 2, 2017

 

Please join us in letting the world know we exist!
We have important wisdom to share with everyone!

 “Delegitimizing those with ES-MCS, who may be warning us all of the need for toxics reduction, also tends to impede development of practical, precautionary, potentially preventive and cost-saving public health strategies.”

http://www.womenscollegehospital.ca/assets/legacy/wch/pdfs/ESMCSStatusReportJune22011.pdf

Amelia Needs Us

 

Many of you are familiar with Amelia Hill, either via  my blog,  her blog, from her facebook group,  or from the several articles she has written or appeared in, where you can read about her most challenging circumstances and how she has worked so hard to not only survive them, but to overcome them and to help others who are hidden away going through similar challenges.

Amelia Hill

Amelia’s awesome mom Danija has contacted me to say that Amelia’s health has taken a real turn for the worse, and that she and her family have run out of funds to get her the very limited, specific foods and medical care Amelia urgently needs now.

A friend has started up a fundraiser where there are more details about what has happened and what is needed.

Please contribute if you can. Every little bit will help.

Amelia Hill’s Medical Fund

https://www.gofundme.com/amazingameliahill

If you can’t donate, then please keep Amelia in your hearts and prayers.

We LOVE you Amelia!
♥ ♥ ♥

P.S. I will keep you updated in the comments when I have more news to share.

When a Friend’s Life Is Being Threatened

Guest Post

A few of us in the MCS community have been burning the proverbial candle at both ends and in the middle, trying to generate public awareness and interest to persuade the NS housing authority to reconsider their 3 year battle to evict our good friend Wendy, despite no accessible alternatives being available.

Their unwillingness to understand and accommodate her disability and her medical team’s recommendations… well, it’s something a lot of us have faced and are facing.

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Loneliness, Posttraumatic Growth, and Invisible Disabilities

Amelia Hill shared an eloquent post about enduring and working with loneliness (see below).  Amelia and I are both  housebound (and have been so for years), but she is currently confined to a much smaller space in her home than I am in mine.

loneliness - Amelia HillFrom Heal Amelia’s Life:

Loneliness. I’ve kinda learned to override the often relentless waves of loneliness one feels living an isolated existence like mine.I don’t deny the feelings of loneliness or push them down in an unhealthy way. But it’s more like a repetitive cycle of acknowledging it & letting it go, acknowledging it & letting it go. It’s how I survive.

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My Niece Said It Was Easy!

Guest post by Sandra McPherson

I have a niece who moved back from out west just a year or so ago. I love her dearly. Her son that she had so much difficulty to have is named Owen. I lost a son named Owen and she contacted me to tell me she wanted to name him after my son unless it would upset me. She is so thoughtful!

I was sucking it up and inviting her here to my place, (safe place) for meals and visits now and then when I was strong enough. Her laundry fragrances and personal products were hard on me but it was only every few months, though I wished it could be more. We talked often about my MCS because she saw me go from a person that was at EVERY party and kid sport gathering and family get together, etc., etc., to a hermit.

inside outside

I had not seen her in several months and she inquired about getting together again. We set up a date for lunch at my place again.

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An Open Letter to the Scented

Guest post by Debbie Clark Seely

Dear friends,

I wanted to take the time to write this letter because we (the “unscented” community) are concerned for you. With it being the holiday season we are seeing multiple reports of friends and family members choosing to cut ties to their unscented loved ones rather than make the effort to visit them unscented. This perplexes us. It makes us feel like you are choosing scent over a human being. Continue reading