Here we go again!
MCS Awareness days, weeks, and months, along with government proclamations have been going on since at least 1998!
It has taken a lot of effort from a lot of people over a lot of years, and for some of us, it doesn’t seem to have made a great deal of difference in our daily lives.
Marie Leblanc, an artist from Winnipeg who is living with MCS/ES herself, is compiling information and statements to put into an MCS awareness project. There are two ideas to contribute to.
The easier one is to share shorter personal statements about your life with MCS/ES and related environmentally linked health conditions, which will be projected onto walls in a way similar to the photo below.
The other project involves answering 6 questions:
Posted in Action, Environmental Health, Environmental Sensitivities
Tagged art, awareness, chemical sensitivity, creativity, EHS, fibromyalgia, invisible disabilities, May 12, MCS, Mold, multiple chemical sensitivities
Many of you are familiar with Amelia Hill, either via my blog, her blog, from her facebook group, or from the several articles she has written or appeared in, where you can read about her most challenging circumstances and how she has worked so hard to not only survive them, but to overcome them and to help others who are hidden away going through similar challenges.
Amelia’s awesome mom Danija has contacted me to say that Amelia’s health has taken a real turn for the worse, and that she and her family have run out of funds to get her the very limited, specific foods and medical care Amelia urgently needs now.
A friend has started up a fundraiser where there are more details about what has happened and what is needed.
Please contribute if you can. ♥ Every little bit will help.
Amelia Hill’s Medical Fund
If you can’t donate, then please keep Amelia in your hearts and prayers.
We LOVE you Amelia!
♥ ♥ ♥
P.S. I will keep you updated in the comments when I have more news to share.
Posted in Community, Disability, Environmental Health, Environmental Sensitivities, Friendship, Gifts, Health, ME/CFS, Multiple Chemical Sensitivities, Pesticides
Tagged allergies, chemical sensitivity, health care access for people with MCS/ES, Human Rights, MCS
Dr Stephen Genuis is someone who has an excellent understanding about environmental and public health.
He now has a new website and has also started an easy to understand video series on environmental health, where he discusses causes, effects, and what can be done to help the growing numbers of us who experience environmentally linked chronic health challenges.
By “those of us” I (and he) mean many more people than conventional medicine considers to be environmentally affected, and he gives excellent examples of this in the videos (as well as in his research papers).
Posted in Education, Environmental Health, Health Promotion, Public Health
Tagged allergies, alzheimer's, asthma, autism, cancer, CFS/ME, chemical sensitivity, Chemicals, deficiencies, dementia, environment, exposures, fibromyalgia, MCS, mental health, mercury poisoning, MS, nutrition, petrochemicals, sensitivities, Stephen J. Genuis
I’ve previously posted about a research project Pamela Gibson from the James Madison University in Virginia was undertaking. She has been asking for women aged 65 and older who have experienced environmental sensitivities (chemical and/or electrical) to participate in an online study of how their needs are being met as they grow older with sensitivities, but due to a lack of participation from women over the age of 65 (does anyone want to guess why?) she has opened up the study to anyone over the age of 21.
WOMEN OVER AGE 65 STUDY MODIFIED TO INCLUDE PERSONS 21 OR OVER WITH ENVIRONMENTAL SENSITIVITIES
(CHEMICAL OR ELECTRICAL)
Alison Johnson has a new video coming out about the need for fragrance-free policies.
From her website:
Card available from Alison Johnson
A Video Produced / Written / Directed by Alison Johnson
“This film covers not only fragrance issues but also presents an overview of multiple chemical sensitivity. It features Dr. L. Christine Oliver, an Associate Clinical Professor of Medicine at Harvard Medical School and former Co-Director of Occupational and Environmental Medicine at Massachusetts General Hospital. The film also contains footage of an interview with the former Commander of Walter Reed Army Medical Center, Dr. Ronald R. Blanck. People with MCS in the film include Gulf War veterans and survivors of the 9/11 WTC attacks, as well as people from all walks of life.”
You can watch the trailer here:
Posted in Accessibility, Air Quality, Environmental Health, Environmental Sensitivities, Fragrance, Health, Human Rights, Public Health
Tagged Alison Johnson, allergies, Anne Steinemann, asthma, chemical sensitivity, Chemicals, fragrance-free, hazardous air pollutants, IAQ, MCS, multiple chemical sensitivities, petrochemicals, video
Unilever, the company responsible for making disabling products like AXE (aka LYNX) has announced they will be expanding their product ingredient lists to include fragrance ingredients above 0.01 percent (100 parts per million) in a product’s formulation (via the SmartLabel app, but not on the actual labels *)
Here’s what we need to know:
* 20 parts per million (ppm) is the FDA’s standard for ‘gluten-free’ *
Which means that people who are allergic or “sensitive” can suffer serious and life threatening effects from substances at well below 100 ppm, and we still won’t know what is causing the symptoms, or what we need to avoid to stay alive.
This plan may help people who aren’t knowingly or immediately affected by fragrance exposures to choose their products more wisely, but it doesn’t go nearly far enough to help those of us who are disabled by or have life threatening reactions to their products.
Edited to add:
Unilever’s fragrance transparency is a major green-wash at 100 ppm, when gluten-free has to be below 20 ppm, and people with isothiazolinone (aka MI) allergy react to as little as 3 ppm, perhaps less.
Also, long-term health limit for fumes from dry-cleaning solvents has dropped from 20 parts per billion to an infinitesimal 2 parts per billion because long-term exposure to even very low concentrations can result in cancer, as well as fetal development problems for pregnant women.
Other interesting tidbits about Unilever:
Posted in Air Quality, Chemicals, Environmental Health, Fragrance, Products
Tagged allergies, asthma, AXE, chemical sensitivity, environmental sensitivities, Fragrance, fragrance chemicals, hazardous air pollutants, IAQ, MCS, petrochemicals, STINK, toxic chemicals, unilever