Tag Archives: chronic illness

Acts of Festive Kindness

Christmas, Birthdays, and Other Holidays with MCS/ES

For most people, these special occasions are times of joy and celebration in the company of friends and loved ones, but for people with invisible disabilities and chronic illnesses like MCS/ES, they can be sad reminders of the lives that we no longer have  access to.

We are still seldom  included in the festivities and are usually left alone to fend for ourselves. Unfortunately, since human beings are social beings, not everyone is well equipped to self occupy, and  some people become seriously depressed and even suicidal because of this.

To realize it’s because some friends, family, neighbours, and co-workers prefer to keep using certain products instead of using other products so we can safely be around them and enjoy their company,  makes it even harder for us, knowing they care more about the products they buy than they care about us. It’s a heart breaking thing to have to live with.

 

  Thankfully, not everyone chooses products over people 

 

Before I became too chemically injured to socialize in crowds, I had a wonderful friend who happily made the effort to make her place and parties safe for me!

In 2005  her invites were all sent out with these words:

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Videos: What’s Making us Sick? The Chemical Erosion of Public Health

If you prefer getting your research information by watching and listening  instead of reading, here are a couple of video presentations by the esteemed Dr Stephen J. Genuis, who is one of the leading experts on  environmental health.

In these presentations he discusses the increases in chronic illness and mental health problems, chemical and other causes and effects,  shortcomings in our health care systems, as well as some treatment options to improve health.

I’ve also linked to related research for those of you who like to read.

videos 4 Genuis

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In a Doctor’s Own Words: A Toxic Legacy and 12,000 (+) Canaries Later

 

Dr. John Molot is a doctor who sees patients with complex, chronic, environmentally linked, and often disabling, health conditions. Although he is retiring from private practice, he is still a staff physician in the Environmental Health Clinic at Women’s College Hospital in Toronto.

He recently released a book, “12,000 Canaries Can’t Be Wrong“,  wrote a report in support of the Ontario Centre of Excellence in Environmental Health (OCEEH), and appears in a video presentation about the health effects of common  chemical exposures (see below).

Check these out:

12,000 Canaries Can’t be Wrong
What’s making you sick & what can you do about it

http://johnmolot.com/books/

12000Canaries_hiRessm

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How to Lose All Your Friends

By Candy Martin

1) Firstly get an illness/disease that no one has ever heard of. As everyone knows everything about every disease that exists, what you have can’t possibly be true or real as they have never heard of it.

2) Try to explain your illness to your friends. They still won’t believe you because they still haven’t heard of it, and frankly your explanation bores them.

3) Try to give a clearer explanation, because YOU REALLY WANT THEIR UNDERSTANDING. Now you will be accused of complaining or of being negative because you have talked about your illness for more than 1 minute.

why aren't you listeningI’m telling you, the earth is not flat!

4) Try to explain why their suggestions to get well aren’t feasible. Now you’re just being difficult and are not worth “helping” any more. Despite knowing nothing about your illness they “know’’ that exercise will help, getting out more will help, eating magic marshmallows will help etc etc. (Even if your Dr advises against it)

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