Marie Leblanc, an artist from Winnipeg who is living with MCS/ES herself, is compiling information and statements to put into an MCS awareness project. There are two ideas to contribute to.
The easier one is to share shorter personal statements about your life with MCS/ES and related environmentally linked health conditions, which will be projected onto walls in a way similar to the photo below.
The other project involves answering 6 questions:
Posted in Environmental Sensitivities, Environmental Health, Action
Tagged art, awareness, chemical sensitivity, creativity, EHS, fibromyalgia, invisible disabilities, May 12, MCS, Mold, multiple chemical sensitivities
I’ve previously posted about a research project Pamela Gibson from the James Madison University in Virginia was undertaking. She has been asking for women aged 65 and older who have experienced environmental sensitivities (chemical and/or electrical) to participate in an online study of how their needs are being met as they grow older with sensitivities, but due to a lack of participation from women over the age of 65 (does anyone want to guess why?) she has opened up the study to anyone over the age of 21.
WOMEN OVER AGE 65 STUDY MODIFIED TO INCLUDE PERSONS 21 OR OVER WITH ENVIRONMENTAL SENSITIVITIES
(CHEMICAL OR ELECTRICAL)
Imagine being disabled (as if drugged, dysfunctional, and definitely disbelieved more often than not) from exposures to legally allowed toxic chemicals in everyday products and materials…. or from wireless signals coming from neighbourhood wifi networks and cell towers…
Now imagine that some of us don’t have to imagine this scenario, because we can feel our brains and bodies being harmed by the exposures just like canaries in the mines did.
Imagine being confined to a safe bubble of a home to avoid disabling exposures, Continue reading
Posted in Accessibility, Disability, Environmental Health, Human Rights, Pollution, Public Health
Tagged allergies, asthma, cancer, EHS, fragrance chemicals, hazardous air pollutants, Housing, IAQ, invisible disabilities, MCS, pesticides, petrochemicals, sensitive to pollution
Wireless Isn’t Magic!
Here’s a really catchy new educational song about wireless radiation, via the ElectricSense youtube channel.
I wish I knew who “Disco Star Power” was, and where to find what else they have done, but a search did not reveal those secrets.
It reminds me of some old Brazilian psychedelic pop I used to enjoy, simple melody and music, and the singer has a beautiful soft voice.
Have a listen, and maybe learn something new too!
“For me, MCS means having to wear a mask when I go out”
MCS Awareness Month Guest Post from Laura J Mac
Multiple Chemical Sensitivity or MCS (also known as Environmental Sensitivities) is a chronic and disabling condition characterized by symptoms from low-level exposures to common chemicals. To put it simply, really common chemical exposures are disabling to some people, even in very small amounts.
ES has been recognized as a disability in Ontario since 2000, and federally (in Canada) since 2007, yet most people, and in fact many medical professionals, have never heard of it.
May is MCS Awareness Month, though I promise you, we are aware of it all year!
Instead of asking others to imagine something so unimaginable, we asked 1500 people with MCS to share what life is like with MCS. These memes are some of the responses.*
Posted in Accessibility, Disability, Environment, Environmental Health, Human Rights, Pollution
Tagged awareness, Chemicals, EHS, environmental sensitivities, fibromyalgia, Fragrance, hazardous air pollutants, Housing, IAQ, invisible disabilities, May 12, MCS, MCS/ES, ME/CFS, multiple chemical sensitivity, petrochemicals
MCS/ES and EHS symptom lists resemble several other symptom lists.
There are many symptoms. Not all are immediate. Some can be delayed.
1999 Consensus Definition Criteria:
1. MCS is a chronic condition.
2. Symptoms recur reproducibly.
3. Symptoms recur in response to low levels of chemical exposure.
4. Symptoms occur when exposed to multiple unrelated chemicals.
5. Symptoms improve or resolve when trigger chemicals (incitants) are removed.
6. Multiple organ systems are affected.
Multiple Chemical Sensitivity: a 1999 Consensus.
Archives of Environmental Health. 54: No 3, May/June 1999; 147-149.
EHS symptom chart from WEEP
MCS ES symptoms include:
Posted in Chemicals, Disability, Environmental Health, Environmental Sensitivities, Health, MCS/ES, Public Health
Tagged allergies, asthma, chronic, EHS, fibromyalgia, health care access for people with MCS/ES, health effects, invisible disabilities, MCS, multimorbidity, multiple chemical sensitivities, multiple chemical sensitivity, petrochemicals, sensitive to pollution, Stephen J. Genuis, Symptoms, TILT, wireless
When we develop MCS/ES, one of the first concerns we have is how to keep our job when other people keep using products and materials that disable us.
Some people are able to negotiate a legally required accommodation policy, but sadly, too many people find these policies are rarely or effectively enforced as they should be.
Recent research from Dr Anne Steinemann shows there are serious adverse impacts due to fragrance use:
“Significantly, 15.1 % of the general population reported that exposure to fragranced products in their work environment has caused them to become sick, lose workdays, or lose a job. Also, 20.2 % of the population reported that if they enter a business, and smell air fresheners or some fragranced product, they want to leave as quickly as possible.
Here are some Human Rights resources on various laws, regulations, and solutions that, when enforced, can help people remain employed without losing their health and abilities:
Posted in Accessibility, Air Quality, Disability, Environmental Sensitivities, Human Rights
Tagged EHS, employment, enforcement, fragrance-free policy, indoor air quality, jobs, MCS, MCS/ES, policies