Part One of Four
Guest post by Che Ray
For those of us with EI (environmental illnesses), the holidays are especially brutal. What were once happy times surrounded by family and friends become increasingly isolating experiences. Depending on how bad off we are with things like fragrance sensitivity (which, next to fruit cake is the worst part about inviting Aunt Betty) or severe fatigue (where you just want to curl up into a ball under the dinner table), more and more we are faced with having to choose between trying to brave a family gathering only to end up sick in bed for weeks or convincing ourselves we will just stay home and write that novel.
In response to a heart-felt plea for help from one newly aware Canary who was torn between wanting to accommodate her family and fear of going overboard and getting sick, I wanted to reach out to her and give her some advice I wish someone had told me. This is more or less what I said:
Posted in Accessibility, Community, Fragrance, Support
Tagged allergies, barriers, chemical sensitivity, environmental illness, environmental sensitivities, fragrance-free, invisible disabilities, MCS, MCS/ES, TILT
WHO Says We Need Fresh Air?!
Guest Post from Marie LeBlanc
Bringing awareness to chemical sensitivity
Marie LeBlanc at the Centennial Concert Hall in Winnipeg. May 12th 2017.
I am an artist in Winnipeg who lives with multiple chemical sensitivity (MCS) and environmental illness caused by mold exposure. My art has been in relation to multiple chemical sensitivity (MCS)/Environmental Illness (EI) and toxic environments.
“WHO says we need fresh air?!” is a series of quotes from sufferers of Multiple Chemical Sensitivity, Environmental Illness, Mold Exposure, Electrohypersensitivity Syndrome, Lyme Disease and other conditions related to Chronic/Complex Immunological Neurological Diseases.
The art installation was on display during the evening of Fri. May 12, on Multiple Chemical Sensitivity (MCS)/Environmental Sensitivities Awareness Day, outside the Centennial Concert Hall (with a few quotes displayed on the indoor screens), and is dedicated to my friend Eliana from Mexico.
Posted in Accessibility, Disability, Environment, Environmental Health, Health, Housing, Human Rights
Tagged allergies, anaphylaxis, asthma, chemical sensitivity, chemicals in clothing, CIND, creativity, EHS, environmental illness, environmental sensitivities, Fragrance, hazardous air pollutants, homeless, Housing, invisible disabilities, Lyme Disease, MCS, MCS/ES, Mold, multiple chemical sensitivities, suicide, toxic chemicals
May 12th is International MCS Awareness Day, and May is MCS Awareness Month. Many people who have MCS also have MCAS – Mast Cell Activation Syndrome, where chemical and other exposures cause anaphylaxis.
Guest Post from Raven
My request for you to visualize:
I’d like to ask each of my friends to sit in a quiet space for just 15 minutes and close your eyes. Breathe and get calm and relaxed.
Now I want you to think of yourself only. Visualize yourself in your body. Once you see or feel you, I want you to see yourself Continue reading
Posted in Community, Disability, Environmental Health, Housing, Human Rights, Imagination, Pollution
Tagged allergies, anaphylaxis, chemical sensitivity, Chemicals, environmental illness, environmental sensitivities, Fragrance, health effects, Housing, invisible disabilities, MCS, MCS/ES, pesticides, petrochemicals
A few of us in the MCS community have been burning the proverbial candle at both ends and in the middle, trying to generate public awareness and interest to persuade the NS housing authority to reconsider their 3 year battle to evict our good friend Wendy, despite no accessible alternatives being available.
Their unwillingness to understand and accommodate her disability and her medical team’s recommendations… well, it’s something a lot of us have faced and are facing.
Posted in Accessibility, Action, Disability, Environmental Health, Friendship, Housing, Human Rights, Medically Required Housing, Support
Tagged #LetWendyStay, environmental illness, environmental sensitivities, fragrance-free, homelessness, invisible disabilities, MCS, MCS housing, petrochemicals, saving lives, systemic discrimination
Someone shared a very good PDF handout with me the other day, one that I had never seen before. It gently explains to people why there is a problem with fragrance, why people may need to avoid fragrances, that it is not the smell, it’s not personal, and a few other bits of helpful information The resource links are old and could be updated (somehow), but it’s otherwise a great tool to share with people who don’t understand.
I can’t find a link to share it from elsewhere, so I am posting it here to make it easily available.
Fragrance-Free Environments and No-Fragrance Spaces (PDF)
The text image is copied below.
Posted in Accessibility, Air Quality, Environmental Health, Fragrance, Policy
Tagged barriers, EI, environmental illness, environmental sensitivities, Fragrance Free Environments, fragrance-free policy, hazardous air pollutants, Human Rights, IAQ, indoor air quality, MCS, petrochemicals, Roberta K Rigsby, sensitive to pollution, toxic chemicals