Tag Archives: environmental sensitivities

Bubbled People

 

I ran across some striking photos by Alex Kisilevich (you can see them in the banner above if you squint) and I shared the link with  the intro “Food for thought… what’s outside the bubble preventing access?”  Someone responded with  “tell me about it”, so I wrote a short story before seeing what the photographer’s intent was, if it was indeed as a writer wrote, to say:

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Endangered Human Art Project: Bringing Awareness to Chemical Sensitivity

WHO Says We Need Fresh Air?!

Guest Post from Marie LeBlanc

Bringing awareness to chemical sensitivity
Marie LeBlanc at the Centennial Concert Hall in Winnipeg. May 12th 2017.

I am an artist  in Winnipeg who lives with multiple chemical sensitivity (MCS) and environmental illness caused by mold exposure. My art has been in relation to multiple chemical sensitivity (MCS)/Environmental Illness (EI) and toxic environments.

“WHO says we need fresh air?!” is a series of quotes from sufferers of Multiple Chemical Sensitivity, Environmental Illness, Mold Exposure, Electrohypersensitivity Syndrome, Lyme Disease and other conditions related to Chronic/Complex Immunological Neurological Diseases.

The art installation was on display during the evening of Fri. May 12, on Multiple Chemical Sensitivity (MCS)/Environmental Sensitivities Awareness Day,  outside the Centennial Concert Hall (with a few quotes displayed on the indoor screens), and is dedicated to my friend Eliana from Mexico.

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An MCS Awareness Visualization

May 12th is International MCS Awareness Day, and May is MCS Awareness Month.  Many people who have MCS also have  MCAS – Mast Cell Activation Syndrome, where chemical and other exposures cause anaphylaxis.

Guest Post from Raven Galarza de Gold

My request for you to visualize:

I’d like to ask each of my friends to sit in a quiet space for just 15 minutes and close your eyes. Breathe and get calm and relaxed.

Now I want you to think of yourself only. Visualize yourself in your body. Once you see or feel you, I want you to see yourself  Continue reading

MCS Mask Challenge for Family, Friends, and You!

Here’s an easy way for everyone to show some support!

And maybe, just maybe, wearing a mask for an hour or a day will spread some understanding of  why the people who fought for smoke free policies did that instead of expecting all non-smokers to just wear masks always and everywhere.

The Mask Challenge is brought to you by

Memes For Inconvenient Disabilities

Help us make May 2017 the last time that we ever hear or read the words:

“MCS? #NeverHeardOfIt!!”

#MaskChallenge! Do it! Grow #MCSAwareness!

Watch the video and read the transcript below:

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Unilever to Disclose Some (but not all) AXE and Other Fragrance Ingredients

Unilever, the company responsible for making disabling products like AXE (aka LYNX) has announced they will be expanding their product ingredient lists  to include fragrance ingredients above 0.01 percent (100 parts per million) in a product’s formulation (via the SmartLabel app, but not on the actual labels *)

Here’s what we need to know:

* 20 parts per million (ppm) is the FDA’s standard for ‘gluten-free’ *

Which means that people who are allergic or “sensitive” can suffer serious and life threatening effects from substances at well below 100 ppm, and we still won’t know what is causing the symptoms, or what we need to avoid to stay alive.

unilever-banner

This plan may help people who aren’t knowingly or immediately affected by fragrance exposures to choose their products more wisely, but it doesn’t go nearly far enough to help those of us who are disabled by or have life threatening reactions to their products.

Edited to add:

Unilever’s fragrance transparency is a major green-wash at 100 ppm, when gluten-free has to be below 20 ppm, and people with isothiazolinone (aka MI) allergy react to as little as 3 ppm, perhaps less.

Also,  long-term health limit for fumes from dry-cleaning solvents has dropped from 20 parts per billion to an infinitesimal 2 parts per billion because long-term exposure to even very low concentrations can result in cancer, as well as fetal development problems for pregnant women.

Other interesting tidbits about Unilever:

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Fragrance Chemicals: Weapons of Environmental and Human Destruction

We are surrounded by and saturated with fragrance chemicals now.

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Fragrance Chemicals:
Weapons of Destruction

(if you have been impacted, you know this is not hyperbole)

Most fragrances are now are made from oil and gas based chemicals.

They are in our personal care, laundry, and cleaning products. They are in garbage bags, candles, and shoes. They are in toys, fire-place logs, and diapers. They are in toilet paper, stationary, and stickers. They are in clothing, pillows, and jewellery. They are in foods, plastics, and medicines. They are in kitty litter, trash bags,  and vacuum cleaner bags. They are even in pesticides, where they are regulated by the EPA, but they are not regulated by anyone when they are added to all the other products we use and are exposed to!

There’s no escaping fragrance even when housebound, because so many  deliveries of even the basics like food, arrive fragrance contaminated!

We were not designed for 24/7 exposures to toxic chemicals

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How much more evidence is needed before something is done about the human and environmental health problems caused by fragranced productss?

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Here’s an info dump with some relevant links and videos:

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Fragranced Products: Risk to People and Profits

From Dr Anne Steinemann’s latest research
“Fragranced consumer products: exposures and effects from emissions”

“Basically, if it contained a fragrance, it posed problems for people” 

 

fragranced-risks

“This is a huge problem; it’s an epidemic”
says Professor Steinemann.

She is especially concerned with involuntary exposure to fragranced products, or what she calls “secondhand scents.

“Over 22% of Americans surveyed can’t go somewhere because exposure to a fragranced product would make them sick.”

“These findings have enormous implications for businesses, workplaces, care facilities, schools, homes, and other private and public places,” said Professor Steinemann. For instance, a growing number of lawsuits under the Americans with Disabilities Act concern involuntary and disabling exposure to fragranced products.”

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