Tag Archives: environmental sensitivities

Province of Ontario Interim Report on ME/CFS, FM, and MCS/ES

The Province of Ontario’s Ministry of Health and Long Term Care’s long awaited Environmental Health Task Force Interim Report has finally been released!

“We found that, throughout the health care system and in society at large, there is:

•a lack of recognition of the seriousness and severity of these conditions
•a profound shortage of knowledgeable care providers
•a dearth of clinical tools to support and guide care
•a discouraging shortage of services and supports for people living with these conditions
•an absence of support for family caregivers.

The lack of knowledge and appropriate accessible care has devastating effects on Ontarians struggling with ME/CFS, FM and ES/MCS.

For those living with ME/CFS, FM and ES/MCS, the lack of recognition of these serious and debilitating conditions is as harmful as the lack of treatments. …

We urge the Minister to act now to raise awareness of these conditions and address the barriers that keep people with ME/CFS, FM and ES/MCS from getting the care and services they need.”

From the press release:

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Françoise Gourd 1950 – 2017

Shared by Doug Atwood

In June 2017, we lost a friend and active member of our community.


Françoise Gourd

 

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Bubbled People

 

I ran across some striking photos by Alex Kisilevich (you can see them in the banner above if you squint) and I shared the link with  the intro “Food for thought… what’s outside the bubble preventing access?”  Someone responded with  “tell me about it”, so I wrote a short story before seeing what the photographer’s intent was, if it was indeed as a writer wrote, to say:

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Endangered Human Art Project: Bringing Awareness to Chemical Sensitivity

WHO Says We Need Fresh Air?!

Guest Post from Marie LeBlanc

Bringing awareness to chemical sensitivity
Marie LeBlanc at the Centennial Concert Hall in Winnipeg. May 12th 2017.

I am an artist  in Winnipeg who lives with multiple chemical sensitivity (MCS) and environmental illness caused by mold exposure. My art has been in relation to multiple chemical sensitivity (MCS)/Environmental Illness (EI) and toxic environments.

“WHO says we need fresh air?!” is a series of quotes from sufferers of Multiple Chemical Sensitivity, Environmental Illness, Mold Exposure, Electrohypersensitivity Syndrome, Lyme Disease and other conditions related to Chronic/Complex Immunological Neurological Diseases.

The art installation was on display during the evening of Fri. May 12, on Multiple Chemical Sensitivity (MCS)/Environmental Sensitivities Awareness Day,  outside the Centennial Concert Hall (with a few quotes displayed on the indoor screens), and is dedicated to my friend Eliana from Mexico.

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An MCS Awareness Visualization

May 12th is International MCS Awareness Day, and May is MCS Awareness Month.  Many people who have MCS also have  MCAS – Mast Cell Activation Syndrome, where chemical and other exposures cause anaphylaxis.

Guest Post from Raven

My request for you to visualize:

I’d like to ask each of my friends to sit in a quiet space for just 15 minutes and close your eyes. Breathe and get calm and relaxed.

Now I want you to think of yourself only. Visualize yourself in your body. Once you see or feel you, I want you to see yourself  Continue reading

MCS Mask Challenge for Family, Friends, and You!

Here’s an easy way for everyone to show some support!

And maybe, just maybe, wearing a mask for an hour or a day will spread some understanding of  why the people who fought for smoke free policies did that instead of expecting all non-smokers to just wear masks always and everywhere.

The Mask Challenge is brought to you by

Memes For Inconvenient Disabilities

Help us make May 2017 the last time that we ever hear or read the words:

“MCS? #NeverHeardOfIt!!”

#MaskChallenge! Do it! Grow #MCSAwareness!

Watch the video and read the transcript below:

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Unilever to Disclose Some (but not all) AXE and Other Fragrance Ingredients

Unilever, the company responsible for making disabling products like AXE (aka LYNX) has announced they will be expanding their product ingredient lists  to include fragrance ingredients above 0.01 percent (100 parts per million) in a product’s formulation (via the SmartLabel app, but not on the actual labels *)

Here’s what we need to know:

* 20 parts per million (ppm) is the FDA’s standard for ‘gluten-free’ *

Which means that people who are allergic or “sensitive” can suffer serious and life threatening effects from substances at well below 100 ppm, and we still won’t know what is causing the symptoms, or what we need to avoid to stay alive.

unilever-banner

This plan may help people who aren’t knowingly or immediately affected by fragrance exposures to choose their products more wisely, but it doesn’t go nearly far enough to help those of us who are disabled by or have life threatening reactions to their products.

Edited to add:

Unilever’s fragrance transparency is a major green-wash at 100 ppm, when gluten-free has to be below 20 ppm, and people with isothiazolinone (aka MI) allergy react to as little as 3 ppm, perhaps less.

Also,  long-term health limit for fumes from dry-cleaning solvents has dropped from 20 parts per billion to an infinitesimal 2 parts per billion because long-term exposure to even very low concentrations can result in cancer, as well as fetal development problems for pregnant women.

Other interesting tidbits about Unilever:

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