Tag Archives: FM

First Municipal Government Adopts Life Saving Plan for People With MCS/ES, CFS/ME, and FM

Good news for some people who have MCS/ES, CFS/ME, and FM

Tarragona SPAIN

RESCUE PLAN FOR PEOPLE WITH CENTRAL SENSITIVITY SYNDROMES:

THE CITY OF TARRAGONA (CATALONIA, SPAIN) IS THE FIRST MUNICIPAL GOVERNMENT THAT IMPLEMENTS IT!

The first municipal government that has stepped forward to implement this plan, is the City of Tarragona Municipal Government (Tarragona is a major city 100 kilometres south of Barcelona). In the plenary session held last November 30th, the “Institutional Declaration of support for people with Central Sensitivity Syndromes” was approved, which consists of a concrete programme of measures. This is a historical step.

In part, the agreement includes:

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2015 – A Retrospective

I was hoping to be able to share some good news with you all, and here it is. We ARE making progress! It is unfortunate that it has taken this long, but I believe we are almost at the point where we will see an “overnight” shift happen.
Here’s what Dr John Molot (the author of “12,000 Canaries Can’t Be Wrong”) has to say:

John Molot

2015-summaryIt’s the end of 2015, a time to celebrate the promise of the coming year but also a time to reflect on the 12 months that have just passed. It was an incredibly exciting year for me professionally. As a physician who advocated for my patients for so many years, I no longer feel that I am paddling upstream against the hardline, medically conservative current that has discredited environmental medicine for decades. The patient groups that I work with have realistic hope for improved care in the near future.

My 2015 :: Science :: Media
Medical Profession :: Insurance Companies :: The Canaries
What’s to come?

My 2015

This year, I have had several opportunities to effectively represent the people with environmentally linked conditions. I have been actively involved with the Ontario Ministry of Health and Long Term Care in the development of the promised (2014) Task Force on Environmental…

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2014 Statistics for MCS, FM, and CFS in Canada

The 2014 statistics for Canadians reporting a diagnosis of fibromyalgia, chronic fatigue syndrome, or multiple chemical sensitivities, (by sex, household population aged 12 and older) are here:

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Report: RECOGNITION, INCLUSION AND EQUITY – THE TIME IS NOW

Many of us have been waiting for action for decades, let’s hope that this is the project that finally makes it happen. It has been a long time coming…

‘RECOGNITION, INCLUSION AND EQUITY – THE TIME IS NOW: PERSPECTIVES OF ONTARIANS LIVING WITH ES/MCS, ME/CFS AND FM’

Recognition Inclusion and Equity the Time is Now

From Varda Burstyn:

At long last, I am writing to let you know about four new groundbreaking reports – products of a 5-year initiative that I and colleagues began in 2008 – that present exciting new research on the three environmentally linked conditions of ES/MCS, ME/CFS and FM, and that develop a wonderful new model of care and support for those living with the conditions in Ontario.

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New PAGE on Statistics for MCS/ES, FM and ME/CFS

I’ve assembled prevalence statistics from Canada and the US into one place, including images and links to documents with more information.

Included are links and images with Canadian stats for MCS/ES, FM, and ME/CFS, and US stats for MCS. I will update to include more stats from more countries when I have reliable sources for them. Please share any that you are aware of.

The new page is located at the top of this site under the MCS/ES page, or via this link:

Statistics for MCS/ES, FM and ME/CFS

Here is a sample of what you will find there:

According to The Canadian Community Health Survey (CCHS) and Statistics Canada, between 2005 and 2010 the rates of people diagnosed with Multiple Chemical Sensitivities (MCS), Fibromyalgia (FM) and Chronic Fatigue Syndrome (CFS) in Canada increased significantly.

The number of people diagnosed with MCS increased by 31%
The number of people diagnosed with FM increased by 15%
The number of people diagnosed with CFS increased by 24%

Chronic Conditions Prevalence Comparisons
(for perspective)

You can find all the statistics, links and images in the ‘Statistics for MCS/ES, FM and ME/CFS’ page at the top of this site under the MCS/ES page, or click on this link:

https://lindasepp.wordpress.com/mcses/statistics-for-mcses-fm-and-mecfs/

With gratitude to the National ME/FM Action Network for much of the material.

Voices from the Shadows, a Film About ME/CFS From the UK

People with visible and invisible disabilities are often not only discriminated against, but far too often abused. Some of the abuse is from ignorance. Other times it is systemic and sometimes it is political.

ME/CFS, FM, and MCS/ES are often overlapping conditions. Canadian diagnosis stats with more details are here or a simple chart is at the bottom of the page here.

There are 3 dedicated clinics in Canada for diagnosing these conditions (and more, such as EHS). One is in Toronto (with a perpetual long wait list) and a new one just opened in BC with Dr Bested as the clinic director and was immediately overwhelmed with people seeking appointments. There is also one in  N.S.

Some provinces have a diagnostic code for ME/CFS now, and for FM, but not for MCS/ES. The CDC has also recognized it. In the US, people can look for doctors on the AAEM website. (there may be others, I am not as familiar with the US resources).

People in the UK and elsewhere are still trying to get proper recognition and protocols in place so that patients there are also not subjected to more abuse on top of these already devastating conditions.

Watch the trailer of the film here, then  you can link to the full length film from the Voices from the Shadows website. Continue reading