The canaries are still waiting!
“We issued a report (in 1985) that identified existing, publicly funded means of diagnosis, and accepted various methods of patient management, including avoidance of offending agents.
We did not feel that more research was needed before these and other measures were introduced to protect patients from being caused harm through inappropriate labelling or the denial of reasonable accommodation.”
Excerpted from this letter by Judge George M. Thomson, B.A., LL.B., LL.M., who chaired the extensive report by the Ad Hoc Committee on Environmental Hypersensitivity Disorders for the Province of Ontario in 1985:
Posted in Environmental Health, Environmental Sensitivities, Human Rights, Pollution, Public Health
Tagged canaries, chemical sensitivity, Fragrance, fragrance-free, hazardous air pollutants, health, invisible disabilities, MCS, MCS/ES, multiple chemical sensitivities, petrochemicals, toxic trespass
WHO Says We Need Fresh Air?!
Guest Post from Marie LeBlanc
Bringing awareness to chemical sensitivity
Marie LeBlanc at the Centennial Concert Hall in Winnipeg. May 12th 2017.
I am an artist in Winnipeg who lives with multiple chemical sensitivity (MCS) and environmental illness caused by mold exposure. My art has been in relation to multiple chemical sensitivity (MCS)/Environmental Illness (EI) and toxic environments.
“WHO says we need fresh air?!” is a series of quotes from sufferers of Multiple Chemical Sensitivity, Environmental Illness, Mold Exposure, Electrohypersensitivity Syndrome, Lyme Disease and other conditions related to Chronic/Complex Immunological Neurological Diseases.
The art installation was on display during the evening of Fri. May 12, on Multiple Chemical Sensitivity (MCS)/Environmental Sensitivities Awareness Day, outside the Centennial Concert Hall (with a few quotes displayed on the indoor screens), and is dedicated to my friend Eliana from Mexico.
Posted in Accessibility, Disability, Environment, Environmental Health, Health, Housing, Human Rights
Tagged allergies, anaphylaxis, asthma, chemical sensitivity, chemicals in clothing, CIND, creativity, EHS, environmental illness, environmental sensitivities, Fragrance, hazardous air pollutants, homeless, Housing, invisible disabilities, Lyme Disease, MCS, MCS/ES, Mold, multiple chemical sensitivities, suicide, toxic chemicals
May 12th is International MCS Awareness Day, and May is MCS Awareness Month. Many people who have MCS also have MCAS – Mast Cell Activation Syndrome, where chemical and other exposures cause anaphylaxis.
Guest Post from Raven
My request for you to visualize:
I’d like to ask each of my friends to sit in a quiet space for just 15 minutes and close your eyes. Breathe and get calm and relaxed.
Now I want you to think of yourself only. Visualize yourself in your body. Once you see or feel you, I want you to see yourself Continue reading
Posted in Community, Disability, Environmental Health, Housing, Human Rights, Imagination, Pollution
Tagged allergies, anaphylaxis, chemical sensitivity, Chemicals, environmental illness, environmental sensitivities, Fragrance, health effects, Housing, invisible disabilities, MCS, MCS/ES, pesticides, petrochemicals
Unilever, the company responsible for making disabling products like AXE (aka LYNX) has announced they will be expanding their product ingredient lists to include fragrance ingredients above 0.01 percent (100 parts per million) in a product’s formulation (via the SmartLabel app, but not on the actual labels *)
Here’s what we need to know:
* 20 parts per million (ppm) is the FDA’s standard for ‘gluten-free’ *
Which means that people who are allergic or “sensitive” can suffer serious and life threatening effects from substances at well below 100 ppm, and we still won’t know what is causing the symptoms, or what we need to avoid to stay alive.
This plan may help people who aren’t knowingly or immediately affected by fragrance exposures to choose their products more wisely, but it doesn’t go nearly far enough to help those of us who are disabled by or have life threatening reactions to their products.
Edited to add:
Unilever’s fragrance transparency is a major green-wash at 100 ppm, when gluten-free has to be below 20 ppm, and people with isothiazolinone (aka MI) allergy react to as little as 3 ppm, perhaps less.
Also, long-term health limit for fumes from dry-cleaning solvents has dropped from 20 parts per billion to an infinitesimal 2 parts per billion because long-term exposure to even very low concentrations can result in cancer, as well as fetal development problems for pregnant women.
Other interesting tidbits about Unilever:
Posted in Air Quality, Chemicals, Environmental Health, Fragrance, Products
Tagged allergies, asthma, AXE, chemical sensitivity, environmental sensitivities, Fragrance, fragrance chemicals, hazardous air pollutants, IAQ, MCS, petrochemicals, STINK, toxic chemicals, unilever
Why do people who lose their health from being polluted and poisoned for profit end up being forced into isolation and invisibility in order to try to remain alive?
Posted in Accessibility, Air Quality, Disability, Environmental Health, Environmental Sensitivities, Pollution
Tagged allergies, asthma, cancer, chemical sensitivity, Chemicals, fibromyalgia, Fragrance, hazardous air pollutants, Human Rights, invisible disabilities, MCS, MCS/ES, petrochemicals, toxic trespass, VOCs
Who should be isolated?
The poisoned or the poisoners?
When we develop MCS/ES, we are told to avoid the triggers that disable us. Yet, far too often, fragrance chemicals are the biggest triggers of disabling effects, yet they are in everything, and everywhere now.
To follow doctors orders, and to have some quality of life (like the ability to look after ourselves), when others at work or elsewhere won’t stop using toxic products, we have to stay isolated in our homes (if we’ve found a safe one). It’s just like being in prison… but for crimes we did not commit.
WE who are immediately disabled by these harmful pollutants are being forced into prisons of isolation for crimes the chemical and fragrance industry are committing, like when they hide oil and gas industry toxic waste chemicals into everyday products and materials, without listing them on labels, they are causing a public health crisis, a crisis that most people are unaware of.
WE who become disabled are being imprisoned for their crimes of saturating people (and our air and water) with toxic chemicals, and so, if we are to be able to see our friends and loved ones, we need to be protected from them, in environments kind of like this:
Posted in Accessibility, Air Quality, Chemicals, Environmental Health, Toxic Trespass
Tagged allergies, asthma, barriers, cancer, chemical sensitivity, environmental sensitivities, fibromyalgia, Fragrance, fragrance chemicals, hazardous air pollutants, IAQ, isolation, MCS, MCS housing, petrochemicals, prison, segregation, sensitivities, systemic barriers
Many thanks to the Courageous Canaries of MCS/ES (and mask)
Awareness Month 2016!
Your courage, kindness, and willingness to share your photos and stories in the “What I Wear in Bad Air” series generated a lot of discussion in various support groups, and will benefit so many others who can see some of the options that are available, as worn by their peers, and that it’s more than ok to be visible. Continue reading
Posted in Air Quality, Disability, Environmental Health, Environmental Sensitivities, Fashion, Fragrance, Human Rights
Tagged allergies, asthma, chemical sensitivity, Fragrance, hazardous air pollutants, invisible disabilities, masks, MCS, MCS/ES, multiple chemical sensitivities, petrochemicals, Products, toxic trespass, VOCs