Tag Archives: MCS/ES

Province of Ontario Interim Report on ME/CFS, FM, and MCS/ES

The Province of Ontario’s Ministry of Health and Long Term Care’s long awaited Environmental Health Task Force Interim Report has finally been released!

“We found that, throughout the health care system and in society at large, there is:

•a lack of recognition of the seriousness and severity of these conditions
•a profound shortage of knowledgeable care providers
•a dearth of clinical tools to support and guide care
•a discouraging shortage of services and supports for people living with these conditions
•an absence of support for family caregivers.

The lack of knowledge and appropriate accessible care has devastating effects on Ontarians struggling with ME/CFS, FM and ES/MCS.

For those living with ME/CFS, FM and ES/MCS, the lack of recognition of these serious and debilitating conditions is as harmful as the lack of treatments. …

We urge the Minister to act now to raise awareness of these conditions and address the barriers that keep people with ME/CFS, FM and ES/MCS from getting the care and services they need.”

From the press release:

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Françoise Gourd 1950 – 2017

Shared by Doug Atwood

In June 2017, we lost a friend and active member of our community.


Françoise Gourd

 

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A Universally Recognized Accessibility Symbol for Environmental Sensitivities?

 

We need an easily recognizable accessibility symbol for non-toxic, wireless, VOC, scent, and fragrance-free places that show they are accessible to people with MCS/ES, asthma, COPD, migraines, and others who need healthy environments in order to remain functional and not become physically or cognitively impaired.

These signs would be used only in places that actually enforce the policies.

The standard accessibility signs have white symbols on blue backgrounds like these:


I’ve never seen anything like this to signify healthy wireless, scent, and fragrance-free indoor air, but these are some others I have found or assembled that might give a designer ideas to run with:

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Song: “I’m a prisoner because of fabric softener”

A song by Jonathan Richman

I had never heard of Jonathan Richman before this song about not being able to walk outside at night because of dryer sheets, fabric softener, air “fresheners”,   and having to close doors and windows because of them,  so I looked him up and found he had done a song about cell phones too. Here they are:
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Published: “Invisible Barriers, Invisible Disabilities, Invisible People”

My article “Invisible Barriers, Invisible Disabilities, Invisible People”   is now available to read in the

Special Issue on Ecopsychology and Environmental Sensitivities:
Chemical, Electrical, and Beyond

All the articles in the entire special issue will be available for free until Sept. 5  2017, which is unprecedented access!

Please check them out and share as widely as possible!

 

Table of Contents:

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Bubbled People

 

I ran across some striking photos by Alex Kisilevich (you can see them in the banner above if you squint) and I shared the link with  the intro “Food for thought… what’s outside the bubble preventing access?”  Someone responded with  “tell me about it”, so I wrote a short story before seeing what the photographer’s intent was, if it was indeed as a writer wrote, to say:

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MCS/ES 2017 Continued: The Canaries Are Still Waiting!

The canaries are still waiting!

“We issued a report (in 1985) that identified existing, publicly funded means of diagnosis, and accepted various methods of patient management, including avoidance of offending agents.

We did not feel that more research was needed before these and other measures were introduced to protect patients from being caused harm through inappropriate labelling or the denial of reasonable accommodation.”

Excerpted from this letter by Judge George M. Thomson, B.A., LL.B., LL.M., who chaired the extensive report by the Ad Hoc Committee on Environmental Hypersensitivity Disorders for the Province of Ontario in 1985:

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