Tag Archives: multiple chemical sensitivities

Statement From ARCH and CELA re MCS, ES, and the Ontario Task Force on Environmental Health

The ARCH Disability Law Centre and the Canadian Environmental Law Association (CELA) announced in September of 2016 that they were working on a report about the challenges faced by people with multiple chemical and/or environmental sensitivities.

ARCH Alert September 2016

“ARCH, in collaboration with the Canadian Environmental Law Association (CELA), has been working on a report about the challenges faced by people with multiple chemical and/or environmental sensitivities.  Our report was informed by consultations with persons who experience these disabilities. 

One of our major findings is the significant extent of attitudinal barriers faced by this group of people.  Often, they find that they are not believed when they ask that scents, fragrances or other products not be worn in the workplace, educational settings, health care settings or places where services are received.  We believe that a large awareness campaign is needed to educate the public about the impact of these disabilities on all aspects of a person’s life.”

 

The release of their report has been delayed because they want to respond to the Ontario Task Force on Environmental Health’s Interim Report, which came out just when their own report was intended for release.

In the November 2017 issue of Arch Alert, both ARCH and CELA  urge the Task Force to do more consultations with those of us who are living the experience:

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Corporate Gaslighting and Conflicts of Interest at the Women’s College Hospital

I saw something that shocked me, and I don’t know how anyone involved with this could have thought it was a good idea.

This is what I saw

If you are a Canadian, you will probably understand.

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It’s pretty much the same thing as this (slightly revised) image:

(pretend it’s done all the way)

What would you think if you saw that?

Shoppers Drug Mart is the antithesis of scent or fragrance free!

 

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Province of Ontario Interim Report on ME/CFS, FM, and MCS/ES

The Province of Ontario’s Ministry of Health and Long Term Care’s long awaited Environmental Health Task Force Interim Report has finally been released!

“We found that, throughout the health care system and in society at large, there is:

•a lack of recognition of the seriousness and severity of these conditions
•a profound shortage of knowledgeable care providers
•a dearth of clinical tools to support and guide care
•a discouraging shortage of services and supports for people living with these conditions
•an absence of support for family caregivers.

The lack of knowledge and appropriate accessible care has devastating effects on Ontarians struggling with ME/CFS, FM and ES/MCS.

For those living with ME/CFS, FM and ES/MCS, the lack of recognition of these serious and debilitating conditions is as harmful as the lack of treatments. …

We urge the Minister to act now to raise awareness of these conditions and address the barriers that keep people with ME/CFS, FM and ES/MCS from getting the care and services they need.”

From the press release:

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Published: “Invisible Barriers, Invisible Disabilities, Invisible People”

My article “Invisible Barriers, Invisible Disabilities, Invisible People”   is now available to read in the

Special Issue on Ecopsychology and Environmental Sensitivities:
Chemical, Electrical, and Beyond

All the articles in the entire special issue will be available for free until Sept. 5  2017, which is unprecedented access!

Please check them out and share as widely as possible!

 

Table of Contents:

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MCS/ES 2017 Continued: The Canaries Are Still Waiting!

The canaries are still waiting!

“We issued a report (in 1985) that identified existing, publicly funded means of diagnosis, and accepted various methods of patient management, including avoidance of offending agents.

We did not feel that more research was needed before these and other measures were introduced to protect patients from being caused harm through inappropriate labelling or the denial of reasonable accommodation.”

Excerpted from this letter by Judge George M. Thomson, B.A., LL.B., LL.M., who chaired the extensive report by the Ad Hoc Committee on Environmental Hypersensitivity Disorders for the Province of Ontario in 1985:

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Endangered Human Art Project: Bringing Awareness to Chemical Sensitivity

WHO Says We Need Fresh Air?!

Guest Post from Marie LeBlanc

Bringing awareness to chemical sensitivity
Marie LeBlanc at the Centennial Concert Hall in Winnipeg. May 12th 2017.

I am an artist  in Winnipeg who lives with multiple chemical sensitivity (MCS) and environmental illness caused by mold exposure. My art has been in relation to multiple chemical sensitivity (MCS)/Environmental Illness (EI) and toxic environments.

“WHO says we need fresh air?!” is a series of quotes from sufferers of Multiple Chemical Sensitivity, Environmental Illness, Mold Exposure, Electrohypersensitivity Syndrome, Lyme Disease and other conditions related to Chronic/Complex Immunological Neurological Diseases.

The art installation was on display during the evening of Fri. May 12, on Multiple Chemical Sensitivity (MCS)/Environmental Sensitivities Awareness Day,  outside the Centennial Concert Hall (with a few quotes displayed on the indoor screens), and is dedicated to my friend Eliana from Mexico.

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Dr Molot Urges Everyone to Support the Canaries

Please take a minute and eleven seconds  to watch this video from Dr.  John Molot where he talks about MCS (multiple chemical sensitivities) and how we (the people who developed MCS) have been stigmatized and that we really are canaries. He speaks about some of the other serious health problems the chemicals that disable us are causing in those who do not have MCS.
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If you don’t know who Dr Molot is, you can read a bio  here and check out the SStP blog post here.
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You can register for the video seminars he speaks of here:
It’s free – you will be sent the link to watch the seminar videos and be informed of upcoming workshops and resources too, but you can unsubscribe at any time.
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Please share this and do look into the work that Dr Molot and EHA Quebec are doing on everyone’s behalf!
Thank you all!